The Bourassa family, from New Milford, PA, is comprised of parents Nicholas and Rebecca and their six children. Their son, Nicholas, who was born on March 18, 2002, and sadly went to heaven on February 1, 2003, was affected by Krabbe disease. There was no treatment available at the time. Their 20-year-old son Joshua was diagnosed with Krabbe disease because of his older brother. Joshua received a cord blood transplant (CBT) in August of 2004 at Duke. The family also includes 25-year-old Alyssa, 18-year-old Stanley, 16-year-old Matthew and 15-year-old Delaney. The Bourassas are a resilient and loving family, supporting each other through life's challenges.

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