Gracelyn, also known as Gracie, received a diagnosis of hypomyelinating leukodystrophy, 4, in March 2023. She's the youngest among her seven siblings, one sister, and six brothers. Initially, her parents noticed her foot turning inward while walking at age three, attributing it to the family's history of Charcot Marie Tooth Disease (CMT), which five of her older siblings have. However, as she grew older, more symptoms emerged, including a severe tremor, both feet turning inward, and cognitive delays. At six, an MRI revealed white matter changes, prompting genetic testing that confirmed the leukodystrophy diagnosis.

Gracie's journey has been a profound teacher in our lives, showing us the true importance of living and loving. We are immensely grateful to have her in our family, a precious blessing from Jesus. And pray every day for a miracle cure to save her life!