Lily started regressing in symptoms and was diagnosed with Krabbe disease at 5 1/2 months old. She was able to receive a stem cell transplant at 6 months old at UPMC. Lily had Covid in 2021, and was on a ventilator for 40 days and needed a tracheostomy to help her recover. We have opted to keep it as she has been healthier with less pneumonia and much easier breathing at night. Lily uses an eye gaze device and is reading books with her teacher. Lily enjoys spending time with her family, making crafts, reading books, going for walks, camping in her camper and watching her shows on her iPad.