Elisa Seeger lives in Brooklyn, NY, with her daughter Sienna, who is 17 years old. Elisa's son, Aidan, born on July 21, 2004, was diagnosed with Adrenoleukodystrophy (ALD) in June 2011 and received a cord blood transplant (CBT) in July 2011 at Duke. Sadly, Aidan went to heaven on April 29, 2012. Elisa continues to honor Aidan's memory by advocating for nationwide ALD newborn screening through her foundation, ALD Alliance.

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