CC Line

Collin was born on December 19, 2010. He was a content baby reaching all his milestones. At 8.5 months, Collin started regressing. We got the diagnosis of Krabbe Leukodystrophy when he was 13 months.

Our life was a whirlwind in trying to find ways to help our son. He truly was our inspiration to keep fighting everyday. Collin lived 8 years and we were blessed to hold him in our arms that long. Because of Collin, we are advocating to get Wisconsin to screen all newborns, but it has been a slow process. Krabbe will forever be a part of our lives.

Refine by