Vanishing White Matter Disease (VWMD)
St. Louis, MO
Born: 12/04/18
Multiple Sulfatase Deficiency (MSD)
Columbia, MO
Born: 9/7/10
Born: 12/3/12
Globoid Cell Leukodystrophy (Krabbe Disease)
Albany, NY
Born: 3/29/95 Went to Heaven: 6/1/99
Havertown, PA
Born: 12/1/21
Transplant
4H Leukodystrophy
Flintshire, United Kingdom
Born: 6/9/2018
Zellweger Spectrum: Zellweger Syndrome
Findlay, OH
Born: 4/17/21
Metachromatic Leukodystrophy (MLD)
Pakistan
Born: 11/14/18
Oculodentodigital Dysplasia
Vancouver, WA
Born: 8/19/17
Coats Plus Syndrome
West Plains, Missouri
Born: 10/7/05 Went to Heaven: 07/09/22