Belyew Family

Hunter Belyew

Vanishing White Matter Disease (VWMD)

St. Louis, MO

Born: 12/04/18

Goodin Family

Grace Goodin

Multiple Sulfatase Deficiency (MSD)

Columbia, MO

Born: 9/7/10

Goodin Family

Grant Goodin

Multiple Sulfatase Deficiency (MSD)

Columbia, MO

Born: 12/3/12

Hazelton Family

William Hazelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Albany, NY

Born: 3/29/95
Went to Heaven: 6/1/99

Oagles Family

Damon Oagles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Havertown, PA

Born: 12/1/21

Transplant

Myles Tucker

4H Leukodystrophy

Flintshire, United Kingdom

Born: 6/9/2018

Mares Family

Peyton Mares

Zellweger Spectrum: Zellweger Syndrome

Findlay, OH

Born: 4/17/21

Ahmad Family

Roumeela Ahmad

Metachromatic Leukodystrophy
(MLD)

Pakistan

Born: 11/14/18

Robinson Family

Rowdy Robinson

Oculodentodigital Dysplasia 

Vancouver, WA

Born: 8/19/17

Atkins Family

Wyatt Atkins

Coats Plus Syndrome

West Plains, Missouri

Born: 10/7/05
Went to Heaven: 07/09/22