Wall of Fame
Smith Family
Jaxon Smith
Globoid Cell Leukodystrophy
(Krabbe Disease)
Galesburg, IL
Born: 4/16/21
Went to Heaven: 12/15/23
Brooks Family
Conner Hess
Adrenoleukodystrophy
(ALD)
Swain, NY
Born: 02/24/17
Brooks Family
Jayden Regatuso
Adrenoleukodystrophy
(ALD)
Swain, NY
Born: 07/07/09
Havlik Family
Reed Havlik
Vanishing White Matter Disease (VWMD)
Jesup, IA
Born: 12/03/12
Foreman Family
Nash Foreman
Vanishing White Matter Disease (VWMD)
Tuscola, IL
Born: 04/11/14
Williams Family
Elizabeth Williams
Globoid Cell Leukodystrophy
(Krabbe Disease)
Childress, TX
Born: 5/13/21
Went to Heaven: 5/20/22
Bell Family
Jadie Bell
Vanishing White Matter Disease (VWMD)
Nephi, UT
Born: 06/07/16
Renegar Family
Camden Renegar
GM1 Gangliosidosis
Walkertown, NC
Born: 02/05/19
Penney Family
Bridger Penney
Unspecified Leukodystrophy
Richfield, UT
Born: 07/20/13
Dubon Family
Angela Dubon
Globoid Cell Leukodystrophy
(Krabbe Disease)
Comayagua, Honduras
Born: 3/22/16
Went to Heaven: 4/05/22