The Austin/Barron family lives in Chicago, Illinois, and consists of Carolyn Austin and her two children, Alissa Barron, a 26-year-old daughter, and Elijah Barron, a 24-year-old son. Both Alissa and Elijah were diagnosed with Krabbe disease, with Alissa receiving her diagnosis in April of 2001, for which there was no treatment available. Elijah was diagnosed in February of 2003 and received a cord blood transplant (CBT) in April of 2003 at Duke.

Learn more here.