Ana Rodriguez lives in Durham, NC, with her 17-year-old son, Elmer Bonilla, who is affected by Krabbe disease. Elmer was the first baby in New York to be diagnosed through newborn screening (NBS) in March 2007 and received a cord blood transplant (CBT) in April 2007 at Duke. Despite the challenges he continues to face, Elmer always has the biggest smile on his face.

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