Aaron and Krystle Myers live in Rockton, IL, with their three children: Kayden, their 15-year-old son; Amelia, their 11-year-old daughter who is affected by Metachromatic Leukodystrophy (MLD) and was diagnosed in May of 2022, too late for treatment; and Emerson, their 7-year-old son. The Myers family continues to advocate for Amelia, ensuring she has the best quality of life, and for future babies born with MLD through their efforts with MLD newborn screening.

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