Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click here and fill out the Wall of Fame form.

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


WOF-Haley S.

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

WOF-Jhyrve

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Hunter's Hope Wall of Fame

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Hunter's Hope Wall of Fame

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Hunter's Hope Wall of Fame

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

WOF-Melina

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

WOF-Emma S.

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

WOF-Anthony Shell

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Hunter's Hope Wall of Fame

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Transplant

Shelton Family

Lana Shelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Riverside, IL

Born: 7/4/16

https://www.facebook.com/groups/1157144810987597/

WOF-Matthew S.

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Hunter's Hope Wall of Fame

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Hunter's Hope Wall of Fame

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

WOF-Christopher S.

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77

WOF-Katherine

Simmons Family

Katherine Rose Simmons

Canavan Disease

Orange Park, FL

Born: 1/28/97
Went to Heaven: 3/6/08

WOF-Jennifer

Sluis Family

Jennifer Sluis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tinley Park, IL

Born: 1/1/89
Went to Heaven: 9/9/05

WOF-Erin

Smallwood Family

Erin Smallwood

Globoid Cell Leukodystrophy
(Krabbe Disease)

Conway, AR

Born: 1/1/09
Went to Heaven: 3/15/10

WOF-Camden

Smith Family

Camden Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seattle, WA

Born: 3/15/06
Went to Heaven: 12/30/07

WOF-Anthony Smith

Smith Family

Anthony Smith

Adrenoleukodystrophy
(ALD)

Charlotte, NC

Born: 7/20/70
Went to Heaven: 4/22/12

Smith Family

Rufus Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Somerset, United Kingdom

Born: 4/22/08
Went to Heaven: 2/8/09

Hunter's Hope Wall of Fame

Smith Family

Lillian Grace Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leonardtown, MD

Born: 9/26/11
Transplant

Bear with Tears

Songs of Joy

“Those who sow in Tears will reap with songs of Joy.”
~ Psalm 126:5

WOF-Jacob S.

Sontag Family

Jacob Sontag

Canavan Disease

Harrison, NY

Born: 2/24/96
Went to Heaven: 1/18/16

WOF-Kenan

Spencer-Witczak Family

Kenan Spencer-Witczak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 2/5/11

WOF - Vanessa

Spinello Family

Vanessa Spinello

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brooklyn, NY

Born: 7/19/99
Went to Heaven: 8/23/17

Spraggins Family

Sam Spraggins

Metachromatic Leukodystrophy
(MLD)

Ponce Inlet, FL

Born: 5/17/01
Transplant
Sam’s Caring Bridge Site
Sam’s Website

WOF-Bruce

Springer Family

Bruce Springer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Charlotte, NC

Born: 10/27/66
Went to Heaven: 11/8/68

WOF-Jameson S.

St. Clair Family

Jameson St. Clair

Globoid Cell Leukodystrophy
(Krabbe Disease)

Naperville, IL

Born: 12/19/89

WOF-Kenny

Stoeckle Family

Kenny Stoeckle

Globoid Cell Leukodystrophy
(Krabbe Disease)

The Woodlands, TX

Born: 8/2/94
Went to Heaven: 11/8/96

Hunter's Hope Wall of Fame

Stroup Family

Johanna “JoJo” Stroup

Metachromatic Leukodystrophy
(MLD)

Port Republic, MD

Born: 7/9/2009
Transplant

WOF-James

Sturtevant Family

James Sturtevant

Adrenoleukodystrophy
(ALD)

Claremont, NH

Born: 6/7/91
Went to Heaven: 11/1/13

WOF-Reesa S.

Stutzman Family

Reesa Stutzman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsdale, AZ

Born: 7/30/11
Baby Reesa’s Website

WOF-Evie

Sugden Family

Evie Sugden

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brafferton, United Kingdom

Born: 2/21/01
Went to Heaven: 1/21/02

WOF-Darcee

Suhr Family Child 1

Darcee Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 6/28/85
Went to Heaven: 12/16/95

WOF-Lindy

Suhr Family Child 2

Lindy Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 9/21/1980

Mika Aaron

Summers Family

Mika Summers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsboro, AL

Born: 9/9/96
Went to Heaven: 3/26/97

WOF-Adithya

Sunilkumar Family

Adithya Sunilkumar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calicut, India

Born: 8/29/02

WOF-David

Suppan Family Child 1

David Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 3/12/96
Went to Heaven: 10/8/06

Suppan Family Child 2

Sean Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 10/25/04
Transplant
Sean Suppan’s Website

WOF-Miraiya

Sutkay Family

Miraiya Sutkay

Unspecified Leukodystrophy

Flint, MI

Born: 12/26/12

WOF-Aminah

Syed Family

Aminah Syed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bridgeview, IL

Born: 10/23/98
Went to Heaven: 7/2/01

WOF-Jayden

Taylor Family

Jayden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Philadelphia, PA

Born: 8/26/07
Went to Heaven: 12/27/08

WOF-Jaden

Taylor Family

Jaden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Buffton, SC

Born: 6/25/07
Went to Heaven: 3/4/08

WOF-Anna T.

Taylor Family

Anna Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaver Dam, KY

Born: 4/28/13
Went to Heaven: 4/2/15

Bear with Tears

Tears

“You are my hiding place; you will protect me from
trouble and surround me with songs of deliverance.”
~ Psalm 32:7

Faith Bear

The Lord your God

“The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing.”
~ Zephaniah 3:17

WOF - Tenley

Thompson Family

Tenley Thompson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Penncock, MN

Born: 5/7/10
Went to Heaven: 10/30/17

WOF-Jeremy

Thoms Family

Jeremy Thoms

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eau Claire, WI

Born: 10/19/00
Transplant

WOF-Madison T.

Tierney Family

Madison Tierney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fairmont, WV

Born: 5/31/04
Transplant

WOF-Michael T.

Town Family

Michael Town

Globoid Cell Leukodystrophy
(Krabbe Disease)

Spring Lake Park, MN

Born: 10/29/94
Went to Heaven: 6/5/05