Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


WOF-Jaymie

Parke Family

Jaymie Leigh Parke

Globoid Cell Leukodystrophy
(Krabbe Disease)

Westmidlands, UK

Born: 9/9/99
Went to Heaven: 3/8/01

Hunter's Hope Wall of Fame

Patil Family

Devashree Patil

Globoid Cell Leukodystrophy
(Krabbe Disease)

Osmanabad, India

Born: 7/4/15
Went to Heaven: 8/7/16

 

WOF-Judson P.

Peacock Family

Judson Peacock

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaumont, TX

Born: 1/5/98
Went to Heaven: 10/16/98

WOF-Angela

Pitra Family

Angela Pitra

Globoid Cell Leukodystrophy
(Krabbe Disease)

Downers Grove, IL

Born: 12/26/97
Went to Heaven: 11/11/98

WOF-Freddie

Place Family

Freddie Place

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bow, NH

Born: 11/25/98
Went to Heaven: 10/29/99

Plans

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Ponce Family

Hayden Ponce

Globoid Cell Leukodsytrophy
(Krabbe)

Coal Valley, IL

Born: 1/26/17
Went to Heaven: 9/25/17

WOF-Liviana

Price Family Child 1

Liviana Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/18/08
Went to Heaven: 9/26/13
Liviana’s Journey

HOF-Giovanni P.

Price Family Child 2

Giovanni Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/16/10

Hunter's Hope Wall of Fame

Price Family Child 3

Cecilia Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 2/13/14

WOF-Noah

Prichard Family

Noah Prichard

Globoid Cell Leukodystrophy
(Krabbe Disease)

DuPont, WA

Born: 9/16/02
Went to Heaven: 10/7/03

WOF-Michael R.

Ramos Family

Michael “Mikey” Ramos Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstown, NJ

Born: 11/12/98
Went to Heaven: 4/15/2014

WOF-Max

Randell Family

Max Randell

Canavan Disease

Buffalo Grove, IL

WOF-Chandler

Raney Family

Chandler Raney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Indianapolis, IN

Born: 11/1/98
Went to Heaven: 12/5/00

WOF-Katalina

Ranken Family

Katalina Ranken

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sewell, NJ

Born: 7/19/02

WOF Kevin Rauner Affected by ALD

Rauner Family

Kevin Rauner

Adrenoleukodystrophy
(ALD)

Lincoln, NB

Born: 9/10/82
Went to Heaven: 10/8/03

WOF-Katarina

Ravnjak Family

Katarina Ravnjak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Slovenia

Born: 10/26/97
Went to Heaven: 2/6/03

Matevz Tislar

Rebol Family

Matevz Rebol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mokronog, Slovenia

Born: 3/17/10
Went to Heaven: 3/29/13

WOF-Christopher R.

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

Hunter's Hope Wall of Fame

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Patterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10

Hunter's Hope Wall of Fame

Rivera Family Child 2

Yuri Rivera

Adrenoleukodystrophy
(ALD)

Patterson, NJ

Born: 10/12/07
Went to Heaven: 5/31/16

WOF-Joseph

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

WOF-Elmer

Rodriquez Family

Elmer Bonilla Rodriquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

WOF-Dina

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

WOF-Amanda

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

WOF-Nicholas R.

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

WOF-Gina

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

WOF-AJ

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

WOF-Courtney

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

Hunter's Hope Wall of Fame

Sain Family

Sophia Sain

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kannapolis, NC

Born: 5/10/15
Went to Heaven: 4/7/16

WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

WOF-Christian S.

Santucci Family

Christian Sanctucci

4H Syndrome

Fairlawn, NJ

Born: 6/30/07

WOF-Jimmy

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/2013

WOF-Mason S.

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

WOF-Blaine

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

WOF-Jacquelyn

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

WOF-Haley S.

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

WOF-Jhyrve

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Hunter's Hope Wall of Fame

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Hunter's Hope Wall of Fame

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Hunter's Hope Wall of Fame

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

WOF-Melina

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

WOF-Emma S.

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

WOF-Anthony Shell

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Hunter's Hope Wall of Fame

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Transplant

Shelton Family

Lana Shelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Riverside, IL

Born: 7/4/16

https://www.facebook.com/groups/1157144810987597/

WOF-Matthew S.

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Hunter's Hope Wall of Fame

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Hunter's Hope Wall of Fame

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

WOF-Christopher S.

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77