Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


WOF-Emma M.

McGregor-Goodrich Family

Emma McGregor

Metachromatic Leukodystrophy
(MLD)

Walnut Creek, CA

Born: 7/3/95
Transplant
Emma’s Foundation

WOF-Kathleen

McNichol Family

Kathleen Ann McNichol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Havertown, PA

Born: 1/18/70
Went to Heaven: 2/17/71

Measles Family

Scarlett Measles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pikeville, TN

Born: 6/6/79
Transplant

WOF-Jackson Messerschmidt

Messerschmidt Family

Jackson Messerschmidt

Unspecified Leukodystrophy

Spokane, WA

Born: 10/28/11
Went to Heaven: 2/23/15

WOF-Josh D.

Meyer Family

Josh Denzil Meyer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dalton, South Africa

Born: 6/3/13
Went to Heaven: 3/24/14

WOF-Abigail M.

Middleton Family

Abigail Middleton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gauteng, South Africa

Born: 1/18/13
Went to Heaven: 1/30/14

WOF-Anthony Middleton

Middleton-Snider Family Child 1

Anthony Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 3/15/99
Went to Heaven: 3/24/11

WOF-Jackie Middleton

Middleton-Snider Family Child 2

Jackie Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 4/11/01
Transplant

WOF-DeJay

Middleton-Snider Family Child 3

DeJay Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 6/28/03
Transplant

WOF-Noa

Milego Family

Noa Milego

Globoid Cell Leukodystrophy
(Krabbe Disease)

Vigo, Spain

Born: 10/29/09
Went to Heaven: 3/24/11

WOF-Megan M.

Miles Family Child 1

Megan Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 10/28/97
Went to Heaven: 8/8/00

Hunter's Hope Wall of Fame

Miles Family Child 2

Degan Cain Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 6/8/03
Transplant

WOF-Logan M.

Miller Family

Logan Miller

Adrenoleukodystrophy
(ALD)

Bellwood, PA
Born: 1/23/02
Logan’s Caring Bridge Site

Miller Family

Branden Miller

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Salle, MB Canada

Born: 10/31/04
Went to Heaven: 8/27/17

WOF Jackson Miller affect by PMD

Miller Family

Jackson Miller

Pelizaeus Merzbacher Disease
(X-linked spastic paraplegia)

Smithburg, MD

Born: 10/28/12
Joy In Jack’s Journey Facebook

WOF-Airionna

Mills Family

Airionna Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson, TN

Born: 12/23/03
Went to Heaven: 5/24/08

WOF-Makinley

Mills Family

Makinley Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Garner, IA

Born: 9/19/06
Went to Heaven: 12/22/07

WOF-Daniel M.

Mogavero Family

Daniel Mogavero

Adrenoleukodystrophy
(ALD)

Cheektowaga, NY

Born: 10/10/04
Transplant

WOF Zander Mohr

Mohr Family

Zander Mohr

Globoid Cell Leukodystrophy
(Krabbe Disease)

Erie, PA

Born: 6/20/14
Went to Heaven: 8/29/16

WOF Charles Moody

Moody Family

Charles Moody

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 2/27/15
Went to Heaven: 6/27/16

 

WOF-Raegan

Moore Family Child 1

Raegan Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 6/22/02
Went to Heaven: 2/1/04

Zoey

Moore Family Child 2

Zoey Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 7/15/05
Transplant

WOF-Connor M.

Moreland Family

Connor Moreland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Greensburg, PA

Born: 8/27/08
Went to Heaven: 8/21/16

WOF-Greyson M.

Morris Family

Greyson Morris

Globoid Cell Leukodystrophy
(Krabbe Disease)

Canyon Lake, TX

Born: 12/18/07
Went to Heaven: 12/12/08
Grey’s Gift

WOF-Jonathan

Morris Family Child 1

Jonathan Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Went to Heaven: 4/15/12

WOF-Matthew M.

Morris Family Child 2

Matthew Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Transplant

Morse Family

Grayson Morse

Globoid Cell Leukodystrophy
(Krabbe)

Boise, ID

Born: 10/30/15
https://www.facebook.com/graysonssmile/

WOF-Daphne

Munishvaran Family

Daphne Munishvaran

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 6/19/96
Went to Heaven: 5/13/06

WOF-Kyle M.

Murphy Family

Kyle Murphy

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 11/21/97
Went to Heaven: 7/28/98

WOF-Kendra

Murray Family

Kendra Murray

Unspecified Leukodystrophy

Sunnyside, WA

Born: 11/12/09
Went to Heaven: 11/18/12

WOF-Chance

Myerscough Family

Chance Myerscough

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brantford, ON Canada

Born: 5/18/01
Went to Heaven: 11/16/10
Chance’s CaringBridge Site

Beautiful Bear

NBS Bears Psalm 23:4

“Even if I walk through a valley, I will not be afraid, because you are with me.”
~Psalm 23:4

WOF-Kaitlin

Nelkie Family

Kaitlin Nelkie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mc Cordsville, IN

Born: 6/7/05
Went to Heaven: 8/18/06

Hunter Bears

Newborn Screening

“For I am the Lord, your God, who takes hold of your right hand and says to you, “do not fear; I will help you.” ~ Isaiah 41:13

Hunter's Hope Wall of Fame

Nichols-Jenkins Family

Logan Nichols

Globoid Cell Leukodystrophy
(Krabbe)

Chicago, IL

Born: 3/10/15
Went to Heaven: 6/20/17

WOF-Emma N.

Nickerson Family

Emma Nickerson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carey, OH

Born: 2/8/12
Transplant

WOF-Lucas N.

Nims Family

Lucas Nims

Globoid Cell Leukodystrophy
(Krabbe Disease)

Satsuma, AL

Born: 4/15/99
Went to Heaven: 8/24/13

WOF-Marshall N.

Nivens Family

Marshall Nivens

Adrenoleukodystrophy
(ALD)

Stanley, NC

Born: 9/19/01
Transplant

WOF-Logan N.

Nobis Family

Logan Nobis

Metachromatic Leukodystrophy
(MLD)

Exeter, IL

Born: 1/1/04
Went to Heaven: 9/24/16

Nocera Family

Ryan Nocera

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mendon, MA

Born: 6/4/02
Went to Heaven: 6/6/05

Hunter's Hope Wall of Fame

O’Boyle Family

Michael O’Boyle

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rocky River, OH

Born: 7/4/09
Transplant

WOF-Matthew T.

O’Brien Family

Matthew Thomas O’Brien

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dousman, WI

Born: 9/9/10
Went to Heaven: 2/2/13

Hunter's Hope Wall of Fame

O’Hanlon Family

Maxwell O’Hanlon

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tewsbury, MA

Born: 11/21/14
Went to Heaven: 5/22/16

WOF-Connor O.

O’Keefe Family

Connor O’Keefe

4H Syndrome

Gibsonton, FL

Born: 9/29/00

Ochoa Family

Sophia Ochoa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chino, CA

Born: 11/4/13
Went to Heaven: 2/19/15

WOF - Wally

Ordoyne Family

Wally Ordoyne

Globoid Cell Leukodystrophy
(Krabbe Disease)

Thibodaux, LA

Born: 11/29/79

WOF-Eric

Osman Family Child 1

Eric Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 10/26/00
Went to Heaven: 10/25/09

WOF-Jacob O.

Osman Family Child 2

Jacob Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 7/15/04
Went to Heaven: 9/1/12

WOF-Jack P.

Palamaro Family

Jack Palamaro

Globoid Cell Leukodystrophy
(Krabbe Disease)

Concord, CA

Born: 8/14/01
Transplant

WOF-Naeva

Paquette Family

Naeva Paquette

Globoid Cell Leukodystrophy
(Krabbe Disease)

Granby, QC Canada

Born: 9/16/11
Went to Heaven: 2/23/13
Naeva’s Facebook