Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


WOF - Travis

Klein Family Child 1

Travis Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 9/23/84
Went to Heaven: 12/19/02

Klein Family Child 2

Spencer Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 1/9/87
Went to Heaven: 1/21/02

WOF-Phoebe

Knibbs-Skiddy Family

Phoebe Knibbs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Suffolk, United Kingdom

Born: 5/29/11
Went to Heaven: 2/23/13

WOF-Jodie

Koester Family

Jodie Koester

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterman, IL

Born: 4/18/76
Went to Heaven: 3/27/80

WOF-Nicole

Kogut Family

Nicole Caitlin Kogut

Globoid Cell Leukodystrophy
(Krabbe Disease)

Elba, NY

Born: 6/25/94
Went to Heaven: 8/16/95

Kristoff Family Child 1

Ryan Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 3/7/01
Transplant

WOF-Alyssa K.

Kristoff Family Child 2

Alyssa Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 7/20/04
Went to Heaven: 11/25/10

WOF-Lexie

Kruger Family

Lexie Kruger

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cape Town, South Africa

Born: 6/9/13
Went to Heaven: 3/20/14
Lexie’s Blogspot

Krupa Family

Steven Adam Krupa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sarasota, FL

Born: 9/30/94

WOF-Hunter L.

Lafe Family

Hunter Lafe

Unspecified Leukodystrophy

Claysville, PA

Born: 3/30/13
Went to Heaven: 1/31/14

Lairson Family

Samantha Marie Lairson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Springboro, OH

Born: 8/3/95
Went to Heaven: 7/16/96

WOF-Madison L.

Layton Family

Madison Layton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson Center, OH

Born: 7/11/12
Went to Heaven: 6/22/2014

WOF - Trevor L.

Leeker Family

Trevor Leeker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wellsville, KS

Born: 5/14/99
Went to Heaven: 2/17/01

WOF-Jack L.

Leonard Family

Jack Leonard

Pelizaeus Merzbacher Disease
(X-Linked Spastic Paraplegia)

Robbinsville, NJ

Born: 3/9/00
Went to Heaven: 6/20/15

WOF-Judson L.

Levasheff Family

Judson Levasheff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Irvine, CA

Born: 12/24/04
Went to Heaven: 11/7/07
Judson’s Legacy

WOF-Eleni

Levidis Family

Eleni Levidis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Macungie, PA

Born: 4/26/93
Went to Heaven: 3/1/01

WOF-Ledger

Lewis Family

Ledger Lewis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mt. Pleasant, UT

Born: 1/2/14
Went to Heaven: 9/18/14

WOF-Jasper

Lipe Family

Jasper Lipe

Metachromatic Leukodystrophy
(MLD)

Chicago, IL

Born: 4/11/05
Went to Heaven: 2/23/13

WOF-Jericho

Little Family

Jericho “Chase” Little

Adrenoleukodystrophy
(ALD)

Rocky Ford, GA

Born: 5/12/00
Went to Heaven: 1/3/14

WOF - Victoria L.

Lockhart Family

Victoria Lockhart

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Bay, AL

Born: 9/19/97
Transplant

WOF-Hadley

Lorg-Luse Family

Hadley Lorg

Globoid Cell Leukodystrophy
(Krabbe Disease)

Oklahoma City, OK

Born: 6/30/04
Went to Heaven: 8/28/15

WOF-Lauren L.

Loughheed Family

Lauren Loughheed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaconsfield, QC Canada

Born: 1/08/11
Went to Heaven: 4/13/15
Life with Lauren

Bear Love Endures

Love

“Love always protects, always trusts,
always hopes, always perseveres.”
~ 1 Corinthians 13:7

Bear Love Endures

Love Endures

“I trust in Your unfailing love; my heart rejoices in your salvation.”
~ Psalm 13:5

Hunter's Hope WOF Marty Luczak

Luczak Family

Marty Luczak

Adrenomyeloneuropathy
(AMN)

Lockport, NY

Born: 6/30/71

WOF-Jackson L.

Lundblad Family

Jackson Lundblad

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carlsbad, CA

Born: 12/14/06
Went to Heaven: 1/28/08

WOF-Emerson

Lyle Family

Emerson Lyle

Metachromatic Leukodystrophy
(MLD)

Lockesburg, AR

Born: 3/23/09
Transplant

WOF-Jack Macpherson

Macpherson Family

Jack Macpherson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Argyll & Bute, Scotland

Born: 7/28/06
Went to Heaven: 4/29/08
Jack’s Caring Bridge Site

Hunter's Hope WOF Jase Main

Main Family

Jase Main

Globoid Cell Leukodystrophy
(Krabbe Disease)

Edmore, MI

Born: 11/12/14

WOF-Morgan

Malfara Family

Morgan Malfara

Aicardi-Goutieres Syndrome
(AGS)

Melbourne Beach, FL

Born: 10/22/97
The Morgan Project

WOF-Gabriella

Manzo Family

Gabriella Paige Manzo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Howard Beach, NY

Born: 8/4/97
Went to Heaven: 4/8/15

Markel-Lapine Family Child 1

Steven Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 8/13/05
Went to Heaven: 3/5/07

WOF-Alilia

Markel-Lapine Family Child 2

Alilia Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 11/11/08
Went to Heaven: 12/23/08

WOF-Lexus

Marsh Family

Lexus Marsh

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mio, MI

Born: 9/10/02
Transplant

WOF-Ethan M.

Marshall Family

Ethan Marshall

Zellweger Syndrome

Decatur, IL

Born: 7/23/10

WOF-Austin

Martin Family

Austin Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monroe, GA

Born: 4/4/94
Went to Heaven: 3/13/96

WOF - Troy

Martin Family

Troy Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mount Airy, NC

Born: 7/27/92
Went to Heaven: 12/6/93

WOF-Alexa

Martinez Family

Alexa Martinez

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/3/91
Went to Heaven: 9/21/92

WOF-Anthony Mattina

Mattina Family Child 1

Anthony Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 12/27/01
Went to Heaven: 3/20/04

Hunter's Hope Wall of Fame

Mattina Family Child 2

Marcus Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 8/28/08
Transplant

WOF-Dylan Maubach

Maubach Family

Dylan Maubach

Globoid Cell Leukodystrophy
(Krabbe Disease)

Washington, IL

Born: 7/29/11
Went to Heaven: 11/11/14

WOF-Ethan M.

Maughan Family Child 1

Ethan Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 8/23/97
Went to Heaven: 10/10/00

WOF-Montgomery

Maughan Family Child 2

Montgomery “Gummy” Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 7/10/08
Went to Heaven: 2/3/13

Maughan Family Child 3

Tabitha Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 10/30/03
Transplant

WOF-Dylan May

May Family

Dylan May

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin, TN

Born: 1/16/04
Went to Heaven: 1/6/09
Dylan’s Family Website

WOF - Tyler M.

Mcadams-Allen Family

Tyler Mcadams

Metachromatic Leukodystrophy
(MLD)

Albuquerque, NM

Born: 9/24/03
Transplant

WOF-Jack Mccall

Mccall Family

Jack Mccall

Adrenoleukodystrophy
(ALD)

Cutler Bay, FL

Born: 2/15/00

WOF-Christopher M.

McClure Family

Christopher McClure

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 7/5/89
Went to Heaven: 5/31/90

WOF-Olivia M.

McCormick Family

Olivia McCormick

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taneytown, MD

Born: 8/5/01
Went to Heaven: 3/30/02

WOF-Casey

Mccurry Family

Casey Mccurry

Globoid Cell Leukodystrophy
(Krabbe Disease)

Longdonderry, Ireland

Born: 12/3/07