Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Hunter's Hope Wall of Fame

Hallock Family

Terry Hallock, III

Globoid Cell Leukodystrophy
(Krabbe Disease)

Shirley, NY

Born: 9/25/01
Transplant

WOF-Daisy

Hamid Family

Daisy Hamid

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lyme, United Kingdom

Born: 4/7/10
Went to Heaven: 2/5/11
Daisy’s Caring Bridge Site

WOF-Liam

Hammonds Family

Liam Hammonds

Globoid Cell Leukodystrophy
(Krabbe Disease)

Country Club Hills, IL

Born: 9/4/00
Went to Heaven: 6/19/01

WOF-Lekendric

Harris Family

Lekendric Harris

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pembroke Township, IL

Born: 1/27/04
Went to Heaven: 6/13/08

WOF-Bradley

Hartman-Barlow Family

Bradley Hartman

Adrenoleukodystrophy
(ALD)

Lancaster, CA

Born: 11/30/95
Went to Heaven: 7/22/17

Hauer Family

Ryder Hauer

Unspecified Leukodystrophy

Mesa, AZ

Born: 9/05/09
Went to Heaven: 8/22/12
Ryder’s Journey

WOF-Elaina

Hayslett Family

Elaina Hayslett

Aicardi-Goutieres Syndrome
(AGS)

Covington, VA

Born: 03/07/02
Went to Heaven: 06/24/11

WOF-Bryce H.

Heckendorf Family

Bryce Heckendorf

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dodgeville, WI

Born: 5/6/13
Went to Heaven: 11/26/14

WOF-Madison H.

Heflin Family

Madison Heflin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lexington, KY

Born: 7/16/01
Went to Heaven: 8/19/05

WOF-Kyle H.

Heidrich Family

Kyle Heidrich

Globoid Cell Leukodystrophy
(Krabbe Disease)

Strasburg, ND

Born: 6/19/08
Went to Heaven: 11/29/13
Kyle’s Caring Bridge Site

WOF-Elly

Hernandez Family

Elly Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laredo, TX

Born: 5/3/01
Passed Away: 9/11/03

WOF-Melanie

Hernandez Family

Melanie Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Peekskill, NY

Born: 5/19/99
Went to Heaven: 2/26/01

WOF-Emilio

Hernandez Family

Emilio Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sonora, Mexico

Born: 9/25/98
Went to Heaven: 12/10/09

Hunter's Hope Wall of Fame

Herring Family Child 1

Tahron “TJ” Herring Jr.

Adrenoleukodystrophy
(ALD)

Ocala, FL

Born: 6/26/07
Went to Heaven: 9/5/16

Hunter's Hope Wall of Fame

Herring Family Child 2

Tyree Herring

Adrenoleukodystrophy
(ALD)

Ocala, FL

Born: 6/10/09

WOF-Megan H.

Hill Family

Megan Hill

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterdown, ON Canada

Born: 12/16/86
Went to Heaven: 2/23/88

Hunter Bears

His Purpose

“And we know that in all things God works for the good of those who love Him, who have been called according to His purpose.”
~ Romans 8:28

WOF-Hunter H.

Hodges Family

Hunter Hodges

Alexander Disease

Ada, OK

Born: 4/17/02

WOF-Chase H.

Holland Family

Chase Holland

Pelizaeus Merzbacher Disease
(X linked spastic paraplegia)

Milford, OH

Born: 11/18/04

Hope and Future Bear

Hope and a Future

“Find rest, O my soul, in God alone; my hope comes from Him.”
~Psalm 62:5

WOF-Jameson H.

Howard Family

Jameson Howard

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 5/9/05
Transplant

WOF-Ella H.

Hudson Family

Ella Hudson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cleckheaton, United Kingdom

Born: 7/21/99
Went to Heaven: 6/19/00

WOF-Daniel H.

Hughes Family

Daniel Hughes

Alexander Disease

Peach Tree Corners, GA

Born: 4/10/10

WOF-Cade

Huitema Family

Cade Huitema

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calgary, Canada

Born: 11/6/12

WOF-Kayla

Irving Family

Kayla Irving

Globoid Cell Leukodystrophy
(Krabbe Disease)

Walla Walla, WA

Born: 4/21/98
Went to Heaven: 5/14/03

WOF-Daryn

Jackson Family

Daryn Jackson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterford, MI

Born: 7/17/01
Went to Heaven: 8/22/04

WOF-Rachel

Jarrell Family Child 1

Rachel Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 2/8/93
Went to Heaven: 12/16/96

WOF-Joseph

Jarrell Family Child 2

Mathew Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 1/17/96
Transplant

WOF-Joseph

Jarrell Family Child 3

Joseph Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 10/28/98
Transplant

WOF-Hasan

Jawaid Family

Hasan Jawaid

Globoid Cell Leukodystrophy
(Krabbe Disease)

Needham, MA

Born: 9/26/12
Went to Heaven: 11/10/14

WOF - Taylor

Jeffries Family

Taylor Jeffries

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newport News, VA

Born: 7/25/00

Thomas Howard Hunters Hope Wall of Fame

Jessee Howard Family

Thomas Howard

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ayden, NC

Born: 9/21/15
Went to Heaven: 7/12/17

Johnson Family

Macy Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maryville, TN

Born: 3/14/17

WOF - Trinity

Johnson Family

Trinity Johnson

Alexander Disease

Medford, OR

Born: 2/28/01

WOF-Olivia J.

Johnson Family

Olivia Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Diego, CA

Born: 5/29/04
Went to Heaven: 10/8/09

WOF - Trevor J.

Joiner Family Child 1

Trevor Lee Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 7/27/96
Went to Heaven: 10/4/04
Trevor’s Caring Bridge Site

WOF-Ross

Joiner Family Child 2

Ross David Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 9/20/01
Went to Heaven: 2/28/04
Ross’s Caring Bridge Site

WOF-Hayden J.

Jones Family

Hayden Jones

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hendersonville, NC

Born: 1/10/06
Went to Heaven: 12/6/08

WOF-Megan P.

Jurek-Plasky Family Child 1

Megan Nicole Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 12/8/92
Went to Heaven: 4/25/94

WOF - Tanner

Jurek-Plasky Family Child 2

Tanner James Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 6/16/95
Went to Heaven: 11/8/96

WOF-Jacek

Kadlubowski Family

Jacek Kadlubowski

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gdansk, Poland

Born: 4/18/09

WOF-Kayalvizhi

Karivalavan Family

Kayalvizhi Karivalavan

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ypsilanti, MI

Born: 12/5/06
Went to Heaven: 4/21/08

WOF-Alexandria

Keene Family

Alexandria Keene

Globoid Cell Leukodystrophy
(Krabbe Disease)

Columbus, MS

Born: 10/14/91
Went to Heaven: 3/5/95

Keiser Family

Leaigha Rose-Ann Keiser

Unspecified Leukodystrophy

Quincy, MI

Born: 6/17/11
Went to Heaven: 11/2/15

WOF-Hunter K.

Kelly Family

Hunter Kelly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Orchard Park, NY

Born: 2/14/97
Went to Heaven: 8/5/05
Meet Hunter

WOF-Olivia K.

Kemist Family

Olivia Kemist

Globoid Cell Leukodystrophy
(Krabbe Disease)

 

Los Altos, CA

Born: 3/4/03
Went to Heaven: 12/4/05

Kennedy Family

Oliver Kennedy

Metachromatic Leukodystrophy

Alberta, Canada

Born: 12/16/11
Went to Heaven: 9/10/17

WOF-Kian

King-Otter Family Child 1

Kian King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborough, UK

Born: 11/1/07
Transplant

WOF-Luis K.

King-Otter Family Child 2

Luis King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborogh, UK

Born: 11/1/07
Transplant

WOF-Madison K.

Klafehn Family

Madison Klafehn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Denver, CO

Born: 4/19/06
Went to Heaven: 12/29/12