Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


WOF-Jeramie

Eveland Family

Jeramie Eveland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 9/27/97
Went to Heaven: 3/14/01

Faith Bear

Faith

“Faith is being sure of what we hope for
and certain of what we do not see.”
~ Hebrews 11:1

WOF-Jared

Faria Family

Jared Faria

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taunton, MA

Born: 10/17/00
Transplant

Beautiful Bear

Fearfully and Wonderfully Made

“You knit me together in my mother’s womb
I praise you because I am fearfully and wonderfully made.”
~ Psalm 139:13-14

WOF-Chloe F.

Fedorak Family Child 1

Chloe Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 2/5/01
Went to Heaven: 12/2/02

Fedorak Family Child 2

Scarlett Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 8/30/05
Transplant

WOF-Dylan Flinchum

Flinchum Family

Dylan Flinchum

Metachromatic Leukodystrophy
(MLD)

Lafayette, NJ

Born: 1/15/09

WOF-Palomita

Flores Family

Palomita Flores

Globoid Cell Leukodystrophy
(Krabbe Disease)

Surprise, AZ

Born: 11/11/11

WOF-Connor F.

Forde Family

Connor Forde

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dubai

Born: 11/8/95
Went to Heaven: 2/9/07

WOF-Frankie

Forgione Family

Frankie Forgione

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lancashire, United Kingdom

Born: 8/28/09
Went to Heaven: 1/1/11
Frankie’s Caring Bridge Site

WOF-Mitchell

Forslind Family Child 1

Mitchell Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 9/21/99
Went to Heaven: 1/18/03

WOF-Kyle F.

Forslind Family Child 2

Kyle Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 6/25/01
Transplant

WOF-Jason

Forslind Family Child 3

Jason Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 11/9/03
Transplant

WOF - Tadan

Foss Family

Tadan Foss

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Belton, MO

Born: 12/29/06
Went to Heaven: 4/26/12

WOF-Anthony F.

Foster Family

Anthony Foster

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 3/9/96
Went to Heaven: 9/16/01

Hunter's Hope Bear

Fountain of Life

“For with you is the Fountain of Life;
in your light we see light.”
~ Psalm 36:9

WOF-Ava

Francisco Family

Ava Francisco

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fountain, CO

Born: 11/24/01
Went to Heaven: 9/22/02

WOF-Haley F.

Freeman Family

Haley Nicole Freeman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fort Wayne, IN

Born: 12/20/96
Went to Heaven: 4/22/98

WOF-Dylan Freeman

Freeman Family

Dylan Freeman

Alexander Disease

Salem, OH

Born: 11/20/96
Went to Heaven: 4/30/04

Hope Future Hunter Bears

Friends & Family

“I thank my God every time I remember you.”
~ Philippians 1:3

WOF-Nickolaus

Frisch Family

Nickolaus Frisch

Zellweger Spectrum: Zellweger Syndrome

Troy, NY

Born: 7/5/07
Went to Heaven: 6/7/11

WOF-Dominic

Froio Family

Dominic Froio

Globoid Cell Leukodystrophy
(Krabbe Disease)

Baltimore, MD

Born: 7/5/80
Went to Heaven: 7/3/98

WOF-Leandra

Frye Family

Leandra Frye

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brazil, IN

Born: 2/3/01
Went to Heaven: 12/28/03

WOF-Kinnari

Gala Family

Kinnari Gala

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fremont, CA

Born: 10/21/97
Went to Heaven: 3/26/01

WOF Zarely

Galindo Family Child 1

Zarely Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Whittier, CA

Born: 6/2/04
Went to Heaven: 2/26/07

Hunter's Hope Wall of Fame

Galindo Family Child 2

Faith Aleah Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/28/15
Transplant

WOF-Johnny

Galvan Family

Johnny Galvan

Adrenoleukodystrophy
(ALD)

Costa Mesa, CA

Born: 7/13/00
Went to Heaven: 2/21/17

WOF - Trevor G.

Garbe Family

Trevor Garbe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newhall, CA

Born: 9/2/89
Went to Heaven: 7/15/12

Hunter's Hope Wall of Fame

Garcia Family

Jackson Garcia

Globoid Cell Leukodystrophy
(Krabbe)

Lawrenceville, GA

Born: 8/9/15
Went to Heaven: 10/21/16

WOF-Ailene

Garcia Family

Ailene Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Puente, CA

Born: 11/2/03
Went to Heaven: 10/20/07

WOF - Victoria G.

Garcia Family Child 1

Victoria Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 7/2/03
Went to Heaven: 8/6/04

WOF-Adam G.

Garcia Family Child 2

Adam Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/22/10
Went to Heaven: 1/27/13

Garrison Family

Bradley Garrison

Adrenoleukodystrophy
(ALD)

Lancaster, CA

Born: 11/30/95
Went to Heaven: 7/22/17

WOF-Hailey

Gaston Family

Hailey Gaston

Unspecified Leukodystrophy

Las Vegas, NV

Born: 5/12/08

WOF - Zoe

Gavriilidis Family

Zoe Gavriilidis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Peoria, AZ

Born: 9/10/07
Went to Heaven: 1/26/09

WOF-Leonie

Gelhart Family

Leonie Gelhart

Metachromatic Leukodystrophy
(MLD)

Nortorf, Germany

Born: 3/11/09
Went to Heaven: 7/28/12

WOF-Parker

Gerlitz Family

Parker Gerlitz

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 7/27/12
Went to Heaven: 12/11/13

WOF-Dalton

Gibson Family

Dalton Gibson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kilgore, TX

Born: 3/26/08
Went to Heaven: 2/25/09

WOF-Hannah G.

Ginion Family

Hannah Ginion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bensalem, PA

Born: 1/15/13
Went to Heaven: 12/28/14
Hope For Hannah Facebook

WOF-Jacob G.

Given Family

Jacob Given

Metachromatic Leukodystrophy
(MLD)

Elkton, MD

Born: 8/14/01

WOF-Laura G.

Glaudemans Family

Laura Glaudemans

Metachromatic Leukodystrophy
(MLD)

Idlewylde, MD

Born: 11/29/89
Transplant

WOF-Raymond

Gonzalez Family

Raymond Gonzalez

Unspecified Leukodystrophy

El Paso, TX

Born: 11/22/05

WOF-Evalina

Gonzalez Family

Evalina Gonzalez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wildomar, CA

Born: 1/28/12
Went to Heaven: 1/29/14

WOF-Chloe G.

Goss Family

Chloe Goss

Unspecified Leukodystrophy

Wauchula, FL

Born: 10/18/10

WOF-Henry G.

Green Family

Henry Green

Metachromatic Leukodystrophy
(MLD)

Raleigh, NC

Born: 6/21/09
Went to Heaven: 12/14/12

WOF-Riley G.

Greene Family

Riley Greene

Metachromatic Leukodystrophy
(MLD)

Chattanooga, TN

Born: 8/26/02
Went to Heaven: 12/22/14

WOF-Ashleigh

Gwin Family

Ashleigh Gwin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 11/15/02
Went to Heaven: 11/29/07

Hunter's Hope Wall of Fame

Hadnot Family

Mykel “MJ” Hadnot Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Milwaukee, WI

Born: 8/18/14

WOF-Adam H.

Haines Family Child 1

Adam Haines

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maple Grove, MN

Born: 2/6/93
Went to Heaven: 5/29/95

Hunter's Hope Wall of Fame

Haines Family Child 2

Erik Haines

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maple Grove, MN

Born: 12/7/91
Transplant