Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


WOF-Chase C.

Carlson Family

Chase Carlson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fullerton, CA

Born: 5/22/03
Went to Heaven: 7/21/05

WOF-Anthony C.

Caruso Family

Anthony Caruso

Globoid Cell Leukodystrophy
(Krabbe Disease)

Glendale, NY

Born: 11/28/74
Went to Heaven: 8/27/76

WOF-Hayden C.

Casavechia Family

Hayden Casavechia

Adenylosuccinate Lysas Deficiency

Benoit, MS

Born: 6/1/2011
Went to Heaven: 8/15/12
Hayden’s Website

WOF-Mac

Casey Family

Mac Casey

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunedin, New Zealand

Born: 8/24/09
Went to Heaven: 10/31/10

Hunter's Hope WOF Caroline Casey

Casey Family

Caroline “CC” Casey

Metachromatic Leukodystrophy
(MLD)

Charlotte, NC

Born: 5/1/13
Caring For Caroline Facebook

WOF-Anaya

Cassin-Potts Family

Anaya Cassin Potts

Globoid Cell Leukodystrophy
(Krabbe Disease)

Nelson, BC, Canada

Born: 8/26/09
Went to Heaven: 11/13/11

WOF-Dylan C.

Changle Family

Dylan Changle

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Kensington, PA

Born: 4/15/09
Went to Heaven: 12/22/09

Hunter's Hope Wall of Fame

Chappell Family

Lucas Chappell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Collinsville, TX

Born: 10/18/11

All Bears

Children of God

“How great is the love the Father has lavished on us, that we should be called Children of God! And that is what we are!”
~ 1 John 3:1a

WOF-Andrew

Christiansen Family

Andrew Christiansen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dublin, CA

Born: 4/8/13
Went to Heaven: 6/28/14

WOF-Kieran

Chumbley Family

Kieran Chumbley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harlow, United Kingdom

Born: 11/9/84
Went to Heaven: 4/11/01

Chynn Family Child 1

Autumn Chynn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newfoundland, Canada

Born: 2/14/16
Went to Heaven: 1/30/17

Chynn Family Child 2

Freya Chynn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newfoundland, Canada

Born: 2/14/16

WOF-Jessica

Claassen Family

Jessica Claassen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 3/2/10
Went to Heaven: 1/27/17

WOF-Aubrey

Claflin Family

Aubrey Claflin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Streetsboro, OH

Born: 12/11/00
Went to Heaven: 12/15/02

WOF-Linda

Claverie Family

Linda Jane Claverie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Netherlands

Born: 3/4/84
Went to Heaven: 1/28/85

WOF-Bryce C.

Clayton Family Child 1

Bryce Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 1/25/07
Clayton’s Quest Blog

WOF-Annalise

Clayton Family Child 2

Annalise Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 5/24/09
Clayton’s Quest Facebook

WOF-Devon

Cole Family Child 1

Devon Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 12/6/97

WOF-Jacob C.

Cole Family Child 2

Jacob Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 8/15/00

WOF-Gracie

Cooley Family Child 1

Gracie Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 6/12/00
Went to Heaven: 9/20/01

WOF-Ella C.

Cooley Family Child 2

Ella Grace Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 5/11/06
Went to Heaven: 6/14/06

WOF-Ashley C.

Cooper Family

Ashley Cooper

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sun Prairie, WI

Born: 5/5/00
Went to Heaven: 11/24/01

WOF-Evan

Cousineau Family

Evan Cousineau

Adrenoleukodystrophy
(ALD)

San Clemente, CA

Born: 11/3/97
Went to Heaven: 11/2/07

WOF-Katelyn

Craft Family

Katelyn Craft

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/4/05
Went to Heaven: 9/25/07
Katelyn’s Caring Bridge Site

WOF-Carmen

Crilly Family

Carmen Crilly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Toronto, ON Canada

Born: 3/2/07
Went to Heaven: 1/21/08

WOF-Joshua C.

Cross Family Child 1

Joshua Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 11/12/92
Went to Heaven: 2/20/95

WOF-Laura C.

Cross Family Child 2

Laura Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 7/31/99
Transplant

Crowell Family

Connor Crowell

Globoid Cell Leukodystroph
(Krabbe Family)

Phoenix, AZ

Born: 3/16/16
Went to Heaven: 3/25/17

WOF-Emily C.

Cullen Family Child 1

Emily Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 2/16/03
Went to Heaven: 4/22/08

WOF-Abigail C.

Cullen Family Child 2

Abigail Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 8/05/09
Went to Heaven: 3/1/13

WOF-Brady

Cunningham Family

Brady Cunningham

Globoid Cell Leukodystrophy
(Krabbe Disease)

Campbell, MO

Born: 4/16/08
Went to Heaven: 4/6/09

Hunter's Hope Wall of Fame

Cushman Family

Collin Cushman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wisconsin Rapids, WI

Born: 12/19/10
Collin’s Crew Facebook

WOF-John

D’Amico Family

John D’Amico

Globoid Cell Leukodystrophy
(Krabbe Disease)

Martinez, GA

Born: 10/25/99

WOF-Jasmine D.

Daigneault Family

Jasmine Daigneault

Aicardi-Goutieres Syndrome
(AGS)

St-Martine, QC Canada

Born: 5/23/97

WOF-Emma D.

Daniels Family Child 1

Emma Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

Born: 7/20/09
Went to Heaven: 3/24/12

Hunter's Hope Wall of Fame

Daniels Family Child 2

Olivia Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

WOF-Madelyn

Davis Family

Madelyn “Maddie” Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Danville, VA

Born: 7/21/11
Went to Heaven: 2/2/13

Hunter's Hope Wall of Fame

Davis Family

Addilyn Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Sharon, ME

Born: 8/23/11
Went to Heaven: 10/21/15

DeLaCruz Family

Abel DeLaCruz

Vanishing White Matter Disease
(Childhood ataxia with diffuse
central nervous system
hypomyelination, or CACH)

Houston, TX

Born: 5/9/09

WOF-Hannah D.

Dement Family

Hannah Dement

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pocahontas, AR

Born: 8/18/07
Went to Heaven: 8/19/08

WOF - Yannick

Dion Family Child 1

Yannick Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 10/4/90
Went to Heaven: 10/4/93

Dion Family Child 2

Sandrine Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 9/27/00
Transplant

WOF-Jaylah

Donaire-Bechtel Family

Jaylah Donaire-Bechtel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, PA

Born: 4/19/12
Went to Heaven: 7/27/14

WOF-Ludmina

Dotti Family

Ludmina Dotti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Santa Fe, Argentina

Born: 1/13/12
Went to Heaven: 1/2/14

WOF-Jonas

Droessler Family

Jonas Droessler

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cuba City, WI

Born: 4/20/88
Went to Heaven: 9/29/90

WOF-Ellane

du Toit Family

Ellane du Toit

Globoid Cell Leukodystrophy
(Krabbe Disease)

Karen Park, South Africa

Born: 12/23/09
Went to Heaven: 7/4/11

WOF-Haley D.

Duffer Family

Haley Duffer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chase City, VA

Born: 11/26/07
Transplant
Hope For Haley Facebook

WOF-Robin

DuPerron Family

Robin DuPerron

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lincoln, NE

Born: 5/10/98
Went to Heaven: 1/19/99

WOF-Marwa E.

Elmouzayen Family

Marwa Elmouzayen

Globoid Cell Leukodystrophy
(Krabbe Disease)

El Cerrito, CA

Born: 8/13/98
Went to Heaven: 3/15/05