The Hunter’s Hope Medical Symposium is a time for Leukodystrophy medical providers, newborn screening lab personnel, industry partners, researchers, and families from around the world to gather for learning, sharing, and Hope.

In Person & Virtual

July 14 – 16th
Holiday Valley Resort
Ellicottville, NY

Important Links

 

Agenda Overview

Monday, July 14th
Arrive at Holiday Valley

Tuesday, July 15th, 8am to 5pm
Newborn Screening for Leukodystrophies

Wednesday, July 16th, 8am to 4pm
Leukodystrophy Treatments and Clinical Trials
Leukodystrophy Clinical Care
Leukodystrophy Care Network (LCN)

Accommodations, Meals, Transportation

Meals, accommodations and ground transportation (upon request) will be provided for all Presenters and the LCN Certified Center Directors and Care Coordinators. All other participants may attend in person at their own expense or attend virtually.

For participants attending in person, a $150 registration fee will help cover your meals and refreshments (on 7/14 and 7/15 while at the resort) and shuttle service* (upon request). All other forms of ground transportation (Uber, taxis, etc.) are at your own expense.

Thank You to our Sponsors!

Learn more about our generous supporters here.