LCN Steering Committee and Medical Experts at our 2017 Family and Medical Symposium

The Leukodystrophy Care Network (LCN) Certified Centers provide innovative therapies, treatment options, expert care and information to families affected by Leukodystrophies. The Leukodystrophy Community recognizes the LCN and its Certified Centers as leaders in Leukodystrophies for patients and medical professionals. Certified Centers are self-sustaining, yet collaborative, networked together to ensure the highest quality, groundbreaking care is available for all Leukodystrophy patients.

LCN Certified Centers adhere to LCN requirements established by the LCN Steering Committee and other Family Advocates.  To learn more about Certified Center requirements, click here – LCN Certified Center Requirements.

The LCN is committed to providing patient-centered, multidisciplinary, expert care to all individuals affected by Leukodystrophies. LCN Certified Centers are staffed with a Care Coordinator to help ensure the best possible care. To learn more about the Care Coordinator, click here – LCN Care Coordinator.

For general questions about the LCN and its Certified, Candidate and Affiliate Centers, please contact us.

LCN Certified Centers

The following LCN Certified Centers meet the LCN Certified Center requirements.
For more information and contact information for each center, please click on the links below.

Ann & Robert H. Lurie Children’s Hospital of Chicago
Duke Children’s Hospital
Kennedy Krieger Institute
Massachusetts General Hospital
Monroe Carell Jr. Children’s Hospital at Vanderbilt

LCN Candidate and Affiliate Centers

The following LCN Centers are either working toward meeting the LCN requirements for Certification or are Affiliate Centers working in collaboration with the LCN.  For more information and contact information for each Center, please click on the links below.

Children’s Healthcare of Atlanta
Children’s National Health System
Golisano Children’s Hospital
Lucile Packard Children’s Hospital at Stanford
Primary Children’s Hospital
Texas Children’s Hospital
The Children’s Hospital of Philadelphia
University of Minnesota Masonic Children’s Hospital
Women & Children’s Hospital of Buffalo


Watch below and see why some of the World’s Leading Leukodystrophy Experts believe the LCN is so important.


Dr. Joanne Kurtzberg, Duke University Hospital, on the importance of the LCN…


Dr. Amy Waldman, Children’s Hospital of Philadelphia, on the importance of the LCN…