If you or your child is affected by a Leukodystrophy, you are not alone. Hunter’s Hope Foundation is fully committed to providing encouragement, education and support to affected families.
Leukodystrophy Care Network
The LCN is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.
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About Leukodystrophies
There are over 50 identified Leukodystrophies, which are genetic, progressive disorders that affect the brain, spinal cord and nervous systems. Alone, each Leukodystrophy may be considered rare, but as a group, Leukodystrophies affect approximately 1 in 4700 individuals.
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Symposium
The Family and Medical Symposium brings together the world’s leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.
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Leukodystrophy Resource Library
The LD Library is your source for Clinical Practice Guidelines, Symposium presentations and other LD Medical resources.
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Clinical Trials and Treatments
After decades of research, the potential for new treatment options is on the horizon for Leukodystrophies. With this comes clinical trials and, hopefully, new and better options for many types of Leukodystrophies.
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