Learning your child received a positive newborn screening result can be scary and overwhelming. Although there is a lot of information to take in and process, this guide is here for you to use at your own pace. Our aim is to provide you with key information about Krabbe disease and newborn screening and to… Read more »

Later Onset Krabbe Disease(LOKD) Consensus recommendations for the classification and long-term follow up of infants who screen positive for Krabbe Disease.