Thursday, July 23, 2020

LCN Certified Centers
Presenters:
Catie Becker – Massachusetts
Dr. Ali Fatemi – Maryland
Dr. Joanne Kurtzberg – North Carolina
Dr. Josh Bonkowsky – Utah
Dr. Stephanie Keller – Georgia
Dr. Jennifer Rubin – Illinois
Dr. Eric Mallack – New York
Dr. Robert Thompson-Stone – New York

LCN Center Care Coordinators
Presenter: Catie Becker

Leukodystrophy Updates

Krabbe Disease
Presenters: Dr. Joanne Kurtzberg and Dr. Joseph Orsini

MLD/CTX
Presenter: Dr. Michael Gelb

Adrenoleukodystrophy (ALD)
Presenter: Dr. Ali Fatemi

Krabbe NBS Patient Perspective Survey
Presenters: Natasha Spencer and Karlita Blackwell

Family Companion Clinical Practice Guidelines and Kids’ Companion
Presenters: Catie Becker, Sara Becker, and Grady Smith

Industry Partners Panel

Hunter’s Hope NBS Update
Presenter: Anna Grantham

ALD NBS Update
Presenter: Elisa Seeger

LCN Musculoskeletal Parent Guide
Presenter: Amy May

Hunter’s Hope Family Programs
Presenter: Jessica Ohlson

Thursday and Friday, July 23 & 24, 2020

Virtual Talent Show

Virtual Family Symposium Walk Video