Hunter’s Hope Foundation is a non-profit organization committed to giving hope through education and awareness, research, and family care for Krabbe, Leukodystrophies, and Newborn Screening for
Every Child. Every Time. Everywhere.

Awareness for Krabbe, Leukodystrophies, and Newborn Screening 

“Light Your Heart with Hope”

The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts.
“For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts
to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6
Kelly Family

Thank You for Your Prayers

Statement from Jim Kelly (March 2, 2018)

As our family has faced many trials and triumphs throughout the years, you have blessed us with your prayers. We are asking for those prayers once again. The oral cancer we hoped would be gone forever has returned. Although I was shocked and deeply saddened to receive this news, I know that God is with me. I continuously talk about the four F’s. Faith, Family, Friends and Fans. With all of you by my side, we will fight and win this battle together. Staying “Kelly Tough” and trusting God, will carry us through the difficult time.

Leukodystrophy Care Network


We need your help to get there… PLEASE DONATE

The Leukodystrophy Care Network (LCN) is a network of medical providers, hospitals, leukodystrophy organizations and affected families. Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.

Click here to learn more

Wall of Fame

With great honor we present to you children affected by Leukodystrophy…

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Pregnant? Newborn Screening

Find out what diseases your state screens for and how you can purchase supplemental newborn screening for Krabbe, ALD and similar diseases.

If you have just received a positive screen, you can find helpful information and more…

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About Hunter

Our lives are forever changed…

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The Kelly Family Story

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