Hope ~ Life
Leukodystrophy ~ Newborn Screening
“For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11
If you or your child is affected by Leukodystrophy and need immediate assistance, please call our office at 716-667-1200.
Affected Family Registration
If you are a family affected by Leukodystrophy, please register with us. Together, we will win the battle against these devastating diseases.
Click here to Register
Family Support
We are here to help affected families in any way we can. Some of our programs include Family Care, Wall of Fame, Wish Gift, Equipment & Supply Exchange, Resource Library, Family and Medical Symposium, Leukodystrophy Care Network, Newborn Screening, LCN Family Collection, Gift of Love, and more.
Click here to learn about support for affected families
Leukodystrophy Care Network
The Leukodystrophy Care Network (LCN) mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers.
Click here to learn more
Newborn Screening (NBS)
Newborn Screening (NBS) is a public health program where infants are screened shortly after birth for a list of conditions not clinically evident early in life. NBS looks for serious developmental, genetic, and metabolic disorders that would not otherwise be detected in time for life-altering treatment. For these disorders, early detection and treatment is essential to preventing irreversible mental or physical disabilities, even death.
Click here to find out more
Podcast
Welcome to the “Immeasurably More” podcast, where faith and hope meet heartbreak and suffering in an uplifting journey of encouragement and perseverance. Join Erin Kelly-Bean and her mother, Jill Kelly as they delve into real stories and life-changing truths that remind us of the boundless love we can experience when we anchor our lives in who God is and who He created us to be.
Click here to learn about our Podcast
Light Your Heart With Hope
The Hunter’s Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts. “For God, who said, ‘Let light shine out of darkness,’ made His light shine in our hearts to give us the light of the knowledge of the glory of God in the face of Christ.” ~ 2 Corinthians 4:6
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About the Kelly Family
Learn about the Kelly Family Story. Read their story in Without a Word.
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