Did you know that a simple heel prick through a newborn screening test could have saved my grandson, Hunter’s life? Well, it’s true. For diseases like Krabbe, early detection through newborn screening is crucial for affected children to receive potentially lifesaving treatment, which is only effective if administered before a child is symptomatic. 

Help ensure that the children in your state are screened at birth for Krabbe and similar diseases by Taking Action! Thank you!

A simple heel prick 
could have saved 
his life…

With Hope,
Jacque Waggoner
CEO & Hunter’s Grandmother

What is Newborn Screening?

Basic facts and information about Newborn Screening.

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Krabbe Newborn Screening

Information for parents whose child received a positive newborn screen for Krabbe Disease.

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Take Action

Advocate for expanded Newborn Screening in your state.

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Supplemental Newborn Screening

Ensure your baby is screened at birth for Krabbe and other disorders through Supplemental Newborn Screening.

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