Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Ramos Family

Michael “Mikey” Ramos Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstown, NJ

Born: 11/12/98
Went to Heaven: 4/15/2014

Randell Family

Max Randell

Canavan Disease

Buffalo Grove, IL

Raney Family

Chandler Raney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Indianapolis, IN

Born: 11/1/98
Went to Heaven: 12/5/00

Ranken Family

Katalina Ranken

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sewell, NJ

Born: 7/19/02

Rauner Family

Kevin Rauner

Adrenoleukodystrophy
(ALD)

Lincoln, NB

Born: 9/10/82
Went to Heaven: 10/8/3

Ravnjak Family

Katarina Ravnjak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Slovenia

Born: 10/26/97
Went to Heaven: 2/6/03

Rebol Family

Matevz Rebol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mokronog, Slovenia

Born: 3/17/10
Went to Heaven: 3/29/13

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Patterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10

Rivera Family Child 2

Yuri Rivera

Adrenoleukodystrophy
(ALD)

Patterson, NJ

Born: 10/12/07
Went to Heaven: 5/31/16

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

Rodriquez Family

Elmer Bonilla Rodriquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

Sain Family

Sophia Sain

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kannapolis, NC

Born: 5/10/15
Went to Heaven: 4/7/16

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

Santucci Family

Christian Sanctucci

4H Syndrome

Fairlawn, NJ

Born: 6/30/07

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/2013

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Transplant

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77

Simmons Family

Katherine Rose Simmons

Canavan Disease

Orange Park, FL

Born: 1/28/97
Went to Heaven: 3/6/08

Sluis Family

Jennifer Sluis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tinley Park, IL

Born: 1/1/89
Went to Heaven: 9/9/05

Smallwood Family

Erin Smallwood

Globoid Cell Leukodystrophy
(Krabbe Disease)

Conway, AR

Born: 1/1/09
Went to Heaven: 3/15/10

Smith Family

Camden Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seattle, WA

Born: 3/15/06
Went to Heaven: 12/30/07

Smith Family

Anthony Smith

Adrenoleukodystrophy
(ALD)

Charlotte, NC

Born: 7/20/70
Went to Heaven: 4/22/12

Smith Family

Rufus Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Somerset, United Kingdom

Born: 4/22/08
Went to Heaven: 2/8/09

Smith Family

Lillian Grace Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leonardtown, MD

Born: 9/26/11
Transplant

Songs of Joy

“Those who sow in Tears will reap with songs of Joy.”
~ Psalm 126:5

Sontag Family

Jacob Sontag

Canavan Disease

Harrison, NY

Born: 2/24/96
Went to Heaven: 1/18/16

Spencer-Witczak Family

Kenan Spencer-Witczak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 2/5/11

Spinello Family

Vanessa Spinello

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brooklyn, NY

Born: 7/19/99

Spraggins Family

Sam Spraggins

Metachromatic Leukodystrophy
(MLD)

Ponce Inlet, FL

Born: 5/17/01
Transplant
Sam’s Caring Bridge Site
Sam’s Website