Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Milego Family

Noa Milego

Globoid Cell Leukodystrophy
(Krabbe Disease)

Vigo, Spain

Born: 10/29/09
Went to Heaven: 3/24/11

Miles Family Child 1

Megan Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 10/28/97
Went to Heaven: 8/8/00

Miles Family Child 2

Degan Cain Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 6/8/03
Transplant

Miller Family

Logan Miller

Adrenoleukodystrophy
(ALD)

Bellwood, PA
Born: 1/23/02
Logan’s Caring Bridge Site

Miller Family

Branden Miller

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Salle, MB Canada

Born: 10/31/04

Miller Family

Jackson Miller

Pelizaeus Merzbacher Disease
(X-linked spastic paraplegia)

Smithburg, MD

Born: 10/28/12
Joy In Jack’s Journey Facebook

Mills Family

Airionna Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson, TN

Born: 12/23/03
Went to Heaven: 5/24/08

Mills Family

Makinley Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Garner, IA

Born: 9/19/06
Went to Heaven: 12/22/07

Mogavero Family

Daniel Mogavero

Adrenoleukodystrophy
(ALD)

Cheektowaga, NY

Born: 10/10/04
Transplant

Mohr Family

Zander Mohr

Globoid Cell Leukodystrophy
(Krabbe Disease)

Erie, PA

Born: 6/20/14
Went to Heaven: 8/29/16

Moody Family

Charles Moody

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 2/27/15
Went to Heaven: 6/27/16

 

Moore Family Child 1

Raegan Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 6/22/02
Went to Heaven: 2/1/04

Moore Family Child 2

Zoey Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 7/15/05
Transplant

Moreland Family

Connor Moreland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Greensburg, PA

Born: 8/27/08
Went to Heaven: 8/21/16

Morris Family

Greyson Morris

Globoid Cell Leukodystrophy
(Krabbe Disease)

Canyon Lake, TX

Born: 12/18/07
Went to Heaven: 12/12/08
Grey’s Gift

Morris Family Child 1

Jonathan Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Went to Heaven: 4/15/12

Morris Family Child 2

Matthew Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Transplant

Munishvaran Family

Daphne Munishvaran

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 6/19/96
Went to Heaven: 5/13/06

Murphy Family

Kyle Murphy

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 11/21/97
Went to Heaven: 7/28/98

Murray Family

Kendra Murray

Unspecified Leukodystrophy

Sunnyside, WA

Born: 11/12/09
Went to Heaven: 11/18/12

Myerscough Family

Chance Myerscough

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brantford, ON Canada

Born: 5/18/01
Went to Heaven: 11/16/10
Chance’s CaringBridge Site

NBS Bears Psalm 23:4

“Even if I walk through a valley, I will not be afraid, because you are with me.”
~Psalm 23:4

Nelkie Family

Kaitlin Nelkie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mc Cordsville, IN

Born: 6/7/05
Went to Heaven: 8/18/06

Newborn Screening

“For I am the Lord, your God, who takes hold of your right hand and says to you, “do not fear; I will help you.” ~ Isaiah 41:13

Nichols-Jenkins Family

Logan Nichols

Globoid Cell Leukodystrophy
(Krabbe)

Chicago, IL

Born: 3/10/15
Went to Heaven: 6/20/17

Nickerson Family

Emma Nickerson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carey, OH

Born: 2/8/12
Transplant

Nims Family

Lucas Nims

Globoid Cell Leukodystrophy
(Krabbe Disease)

Satsuma, AL

Born: 4/15/99
Went to Heaven: 8/24/13

Nivens Family

Marshall Nivens

Adrenoleukodystrophy
(ALD)

Stanley, NC

Born: 9/19/01
Transplant

Nobis Family

Logan Nobis

Metachromatic Leukodystrophy
(MLD)

Exeter, IL

Born: 1/1/04
Went to Heaven: 9/24/16

Nocera Family

Ryan Nocera

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mendon, MA

Born: 6/4/02
Went to Heaven: 6/6/05

O’Boyle Family

Michael O’Boyle

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rocky River, OH

Born: 7/4/09
Transplant

O’Brien Family

Matthew Thomas O’Brien

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dousman, WI

Born: 9/9/10
Went to Heaven: 2/2/13

O’Hanlon Family

Maxwell O’Hanlon

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tewsbury, MA

Born: 11/21/14
Went to Heaven: 5/22/16

O’Keefe Family

Connor O’Keefe

4H Syndrome

Gibsonton, FL

Born: 9/29/00

Ochoa Family

Sophia Ochoa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chino, CA

Born: 11/4/13
Went to Heaven: 2/19/15

Ordoyne Family

Wally Ordoyne

Globoid Cell Leukodystrophy
(Krabbe Disease)

Thibodaux, LA

Born: 11/29/79

Osman Family Child 1

Eric Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 10/26/00
Went to Heaven: 10/25/09

Osman Family Child 2

Jacob Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 7/15/04
Went to Heaven: 9/1/12

Palamaro Family

Jack Palamaro

Globoid Cell Leukodystrophy
(Krabbe Disease)

Concord, CA

Born: 8/14/01
Transplant

Paquette Family

Naeva Paquette

Globoid Cell Leukodystrophy
(Krabbe Disease)

Granby, QC Canada

Born: 9/16/11
Went to Heaven: 2/23/13
Naeva’s Facebook

Parke Family

Jaymie Leigh Parke

Globoid Cell Leukodystrophy
(Krabbe Disease)

Westmidlands, UK

Born: 9/9/99
Went to Heaven: 3/8/01

Patil Family

Devashree Patil

Globoid Cell Leukodystrophy
(Krabbe Disease)

Osmanabad, India

Born: 7/4/15
Went to Heaven: 8/7/16

 

Peacock Family

Judson Peacock

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaumont, TX

Born: 1/5/98
Went to Heaven: 10/16/98

Pitra Family

Angela Pitra

Globoid Cell Leukodystrophy
(Krabbe Disease)

Downers Grove, IL

Born: 12/26/97
Went to Heaven: 11/11/98

Place Family

Freddie Place

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bow, NH

Born: 11/25/98
Went to Heaven: 10/29/99

Plans

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Price Family Child 1

Liviana Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/18/08
Went to Heaven: 9/26/13
Liviana’s Journey

Price Family Child 2

Giovanni Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/16/10

Price Family Child 3

Cecilia Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 2/13/14

Prichard Family

Noah Prichard

Globoid Cell Leukodystrophy
(Krabbe Disease)

DuPont, WA

Born: 9/16/02
Went to Heaven: 10/7/03