Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Lafe Family

Hunter Lafe

Unspecified Leukodystrophy

Claysville, PA

Born: 3/30/13
Went to Heaven: 1/31/14

Lairson Family

Samantha Marie Lairson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Springboro, OH

Born: 8/3/95
Went to Heaven: 7/16/96

Layton Family

Madison Layton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson Center, OH

Born: 7/11/12
Went to Heaven: 6/22/2014

Leeker Family

Trevor Leeker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wellsville, KS

Born: 5/14/99
Went to Heaven: 2/17/01

Leonard Family

Jack Leonard

Pelizaeus Merzbacher Disease
(X-Linked Spastic Paraplegia)

Robbinsville, NJ

Born: 3/9/00
Went to Heaven: 6/20/15

Levasheff Family

Judson Levasheff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Irvine, CA

Born: 12/24/04
Went to Heaven: 11/7/07
Judson’s Legacy

Levidis Family

Eleni Levidis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Macungie, PA

Born: 4/26/93
Went to Heaven: 3/1/01

Lewis Family

Ledger Lewis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mt. Pleasant, UT

Born: 1/2/14
Went to Heaven: 9/18/14

Lipe Family

Jasper Lipe

Metachromatic Leukodystrophy
(MLD)

Chicago, IL

Born: 4/11/05
Went to Heaven: 2/23/13

Little Family

Jericho “Chase” Little

Adrenoleukodystrophy
(ALD)

Rocky Ford, GA

Born: 5/12/00
Went to Heaven: 1/3/14

Lockhart Family

Victoria Lockhart

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Bay, AL

Born: 9/19/97
Transplant

Lorg-Luse Family

Hadley Lorg

Globoid Cell Leukodystrophy
(Krabbe Disease)

Oklahoma City, OK

Born: 6/30/04
Went to Heaven: 8/28/15

Loughheed Family

Lauren Loughheed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaconsfield, QC Canada

Born: 1/08/11
Went to Heaven: 4/13/15
Life with Lauren

Bear Love Endures

Love

“Love always protects, always trusts,
always hopes, always perseveres.”
~ 1 Corinthians 13:7

Bear Love Endures

Love Endures

“I trust in Your unfailing love; my heart rejoices in your salvation.”
~ Psalm 13:5

Luczak Family

James Marti Luczak

Adrenomyeloneuropathy
(AMN)

Lockport, NY

Born: 6/30/71

Lundblad Family

Jackson Lundblad

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carlsbad, CA

Born: 12/14/06
Went to Heaven: 1/28/08

Lyle Family

Emerson Lyle

Metachromatic Leukodystrophy
(MLD)

Lockesburg, AR

Born: 3/23/09
Transplant

Macpherson Family

Jack Macpherson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Argyll & Bute, Scotland

Born: 7/28/06
Went to Heaven: 4/29/08
Jack’s Caring Bridge Site

Main Family

Jase Main

Globoid Cell Leukodystrophy
(Krabbe Disease)

Edmore, MI

Born: 11/12/14

Malfara Family

Morgan Malfara

Aicardi-Goutieres Syndrome
(AGS)

Melbourne Beach, FL

Born: 10/22/97
The Morgan Project

Manzo Family

Gabriella Paige Manzo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Howard Beach, NY

Born: 8/4/97
Went to Heaven: 4/8/15

Markel-Lapine Family Child 1

Steven Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 8/13/05
Went to Heaven: 3/5/07

Markel-Lapine Family Child 2

Alilia Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 11/11/08
Went to Heaven: 12/23/08

Marsh Family

Lexus Marsh

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mio, MI

Born: 9/10/02
Transplant

Marshall Family

Ethan Marshall

Zellweger Syndrome

Decatur, IL

Born: 7/23/10

Martin Family

Austin Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monroe, GA

Born: 4/4/94
Went to Heaven: 3/13/96

Martin Family

Troy Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mount Airy, NC

Born: 7/27/92
Went to Heaven: 12/6/93

Martinez Family

Alexa Martinez

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/3/91
Went to Heaven: 9/21/92

Mattina Family Child 1

Anthony Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 12/27/01
Went to Heaven: 3/20/04

Mattina Family Child 2

Marcus Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 8/28/08
Transplant

Maubach Family

Dylan Maubach

Globoid Cell Leukodystrophy
(Krabbe Disease)

Washington, IL

Born: 7/29/11
Went to Heaven: 11/11/14

Maughan Family Child 1

Ethan Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 8/23/97
Went to Heaven: 10/10/00

Maughan Family Child 2

Montgomery “Gummy” Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 7/10/08
Went to Heaven: 2/3/13

Maughan Family Child 3

Tabitha Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 10/30/03
Transplant

May Family

Dylan May

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin, TN

Born: 1/16/04
Went to Heaven: 1/6/09
Dylan’s Family Website

Mcadams-Allen Family

Tyler Mcadams

Metachromatic Leukodystrophy
(MLD)

Albuquerque, NM

Born: 9/24/03
Transplant

Mccall Family

Jack Mccall

Adrenoleukodystrophy
(ALD)

Cutler Bay, FL

Born: 2/15/00

McClure Family

Christopher McClure

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 7/5/89
Went to Heaven: 5/31/90

McCormick Family

Olivia McCormick

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taneytown, MD

Born: 8/5/01
Went to Heaven: 3/30/02

Mccurry Family

Casey Mccurry

Globoid Cell Leukodystrophy
(Krabbe Disease)

Longdonderry, Ireland

Born: 12/3/07

McGregor-Goodrich Family

Emma McGregor

Metachromatic Leukodystrophy
(MLD)

Walnut Creek, CA

Born: 7/3/95
Transplant
Emma’s Foundation

McNichol Family

Kathleen Ann McNichol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Havertown, PA

Born: 1/18/70
Went to Heaven: 2/17/71

Measles Family

Scarlett Measles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pikeville, TN

Born: 6/6/79
Transplant

Messerschmidt Family

Jackson Messerschmidt

Unspecified Leukodystrophy

Spokane, WA

Born: 10/28/11
Went to Heaven: 2/23/15

Meyer Family

Josh Denzil Meyer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dalton, South Africa

Born: 6/3/13
Went to Heaven: 3/24/14

Middleton Family

Abigail Middleton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gauteng, South Africa

Born: 1/18/13
Went to Heaven: 1/30/14

Middleton-Snider Family Child 1

Anthony Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 3/15/99
Went to Heaven: 3/24/11

Middleton-Snider Family Child 2

Jackie Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 4/11/01
Transplant

Middleton-Snider Family Child 3

DeJay Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 6/28/03
Transplant