Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Hayslett Family

Elaina Hayslett

Aicardi-Goutieres Syndrome
(AGS)

Covington, VA

Born: 03/07/02
Went to Heaven: 06/24/11

Heckendorf Family

Bryce Heckendorf

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dodgeville, WI

Born: 5/6/13
Went to Heaven: 11/26/14

Heflin Family

Madison Heflin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lexington, KY

Born: 7/16/01
Went to Heaven: 8/19/05

Heidrich Family

Kyle Heidrich

Globoid Cell Leukodystrophy
(Krabbe Disease)

Strasburg, ND

Born: 6/19/08
Went to Heaven: 11/29/13
Kyle’s Caring Bridge Site

Hernandez Family

Elly Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laredo, TX

Born: 5/3/01
Passed Away: 9/11/03

Hernandez Family

Melanie Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Peekskill, NY

Born: 5/19/99
Went to Heaven: 2/26/01

Hernandez Family

Emilio Hernandez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sonora, Mexico

Born: 9/25/98
Went to Heaven: 12/10/09

Herring Family Child 1

Tahron “TJ” Herring Jr.

Adrenoleukodystrophy
(ALD)

Ocala, FL

Born: 6/26/07
Went to Heaven: 9/5/16

Herring Family Child 2

Tyree Herring

Adrenoleukodystrophy
(ALD)

Ocala, FL

Born: 6/10/09

Hill Family

Megan Hill

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterdown, ON Canada

Born: 12/16/86
Went to Heaven: 2/23/88

His Purpose

“And we know that in all things God works for the good of those who love Him, who have been called according to His purpose.”
~ Romans 8:28

Hodges Family

Hunter Hodges

Alexander Disease

Ada, OK

Born: 4/17/02

Holland Family

Chase Holland

Pelizaeus Merzbacher Disease
(X linked spastic paraplegia)

Milford, OH

Born: 11/18/04

Hope and a Future

“Find rest, O my soul, in God alone; my hope comes from Him.”
~Psalm 62:5

Howard Family

Jameson Howard

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 5/9/05
Transplant

Hudson Family

Ella Hudson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cleckheaton, United Kingdom

Born: 7/21/99
Went to Heaven: 6/19/00

Hughes Family

Daniel Hughes

Alexander Disease

Peach Tree Corners, GA

Born: 4/10/10

Huitema Family

Cade Huitema

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calgary, Canada

Born: 11/6/12

Irving Family

Kayla Irving

Globoid Cell Leukodystrophy
(Krabbe Disease)

Walla Walla, WA

Born: 4/21/98
Went to Heaven: 5/14/03

Jackson Family

Daryn Jackson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterford, MI

Born: 7/17/01
Went to Heaven: 8/22/04

Jarrell Family Child 1

Rachel Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 2/8/93
Went to Heaven: 12/16/96

Jarrell Family Child 2

Mathew Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 1/17/96
Transplant

Jarrell Family Child 3

Joseph Jarrell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taylorsville, NC

Born: 10/28/98
Transplant

Jawaid Family

Hasan Jawaid

Globoid Cell Leukodystrophy
(Krabbe Disease)

Needham, MA

Born: 9/26/12
Went to Heaven: 11/10/14

Jeffries Family

Taylor Jeffries

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newport News, VA

Born: 7/25/00

Jessee Howard Family

Thomas Howard

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ayden, NC

Born: 9/21/15
Went to Heaven: 7/12/17

Johnson Family

Trinity Johnson

Alexander Disease

Medford, OR

Born: 2/28/01

Johnson Family

Olivia Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Diego, CA

Born: 5/29/04
Went to Heaven: 10/8/09

Joiner Family Child 1

Trevor Lee Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 7/27/96
Went to Heaven: 10/4/04
Trevor’s Caring Bridge Site

Joiner Family Child 2

Ross David Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 9/20/01
Went to Heaven: 2/28/04
Ross’s Caring Bridge Site

Jones Family

Hayden Jones

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hendersonville, NC

Born: 1/10/06
Went to Heaven: 12/6/08

Jurek-Plasky Family Child 1

Megan Nicole Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 12/8/92
Went to Heaven: 4/25/94

Jurek-Plasky Family Child 2

Tanner James Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 6/16/95
Went to Heaven: 11/8/96

Kadlubowski Family

Jacek Kadlubowski

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gdansk, Poland

Born: 4/18/09

Karivalavan Family

Kayalvizhi Karivalavan

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ypsilanti, MI

Born: 12/5/06
Went to Heaven: 4/21/08

Keene Family

Alexandria Keene

Globoid Cell Leukodystrophy
(Krabbe Disease)

Columbus, MS

Born: 10/14/91
Went to Heaven: 3/5/95

Kelly Family

Hunter Kelly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Orchard Park, NY

Born: 2/14/97
Went to Heaven: 8/5/05
Meet Hunter

Kemist Family

Olivia Kemist

Globoid Cell Leukodystrophy
(Krabbe Disease)

 

Los Altos, CA

Born: 3/4/03
Went to Heaven: 12/4/05

King-Otter Family Child 1

Kian King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborough, UK

Born: 11/1/07
Transplant

King-Otter Family Child 2

Luis King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborogh, UK

Born: 11/1/07
Transplant

Klafehn Family

Madison Klafehn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Denver, CO

Born: 4/19/06
Went to Heaven: 12/29/12

Klein Family Child 1

Travis Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 9/23/84
Went to Heaven: 12/19/02

Klein Family Child 2

Spencer Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 1/9/87
Went to Heaven: 1/21/02

Knibbs-Skiddy Family

Phoebe Knibbs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Suffolk, United Kingdom

Born: 5/29/11
Went to Heaven: 2/23/13

Koester Family

Jodie Koester

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterman, IL

Born: 4/18/76
Went to Heaven: 3/27/80

Kogut Family

Nicole Caitlin Kogut

Globoid Cell Leukodystrophy
(Krabbe Disease)

Elba, NY

Born: 6/25/94
Went to Heaven: 8/16/95

Kristoff Family Child 1

Ryan Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 3/7/01
Transplant

Kristoff Family Child 2

Alyssa Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 7/20/04
Went to Heaven: 11/25/10

Kruger Family

Lexie Kruger

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cape Town, South Africa

Born: 6/9/13
Went to Heaven: 3/20/14
Lexie’s Blogspot

Krupa Family

Steven Adam Krupa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sarasota, FL

Born: 9/30/94