Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Fedorak Family Child 2

Scarlett Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 8/30/05
Transplant

Flinchum Family

Dylan Flinchum

Metachromatic Leukodystrophy
(MLD)

Lafayette, NJ

Born: 1/15/09

Flores Family

Palomita Flores

Globoid Cell Leukodystrophy
(Krabbe Disease)

Surprise, AZ

Born: 11/11/11

Forde Family

Connor Forde

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dubai

Born: 11/8/95
Went to Heaven: 2/9/07

Forgione Family

Frankie Forgione

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lancashire, United Kingdom

Born: 8/28/09
Went to Heaven: 1/1/11
Frankie’s Caring Bridge Site

Forslind Family Child 1

Mitchell Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 9/21/99
Went to Heaven: 1/18/03

Forslind Family Child 2

Kyle Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 6/25/01
Transplant

Forslind Family Child 3

Jason Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 11/9/03
Transplant

Foss Family

Tadan Foss

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Belton, MO

Born: 12/29/06
Went to Heaven: 4/26/12

Foster Family

Anthony Foster

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 3/9/96
Went to Heaven: 9/16/01

Fountain of Life

“For with you is the Fountain of Life;
in your light we see light.”
~ Psalm 36:9

Francisco Family

Ava Francisco

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fountain, CO

Born: 11/24/01
Went to Heaven: 9/22/02

Freeman Family

Haley Nicole Freeman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fort Wayne, IN

Born: 12/20/96
Went to Heaven: 4/22/98

Freeman Family

Dylan Freeman

Alexander Disease

Salem, OH

Born: 11/20/96
Went to Heaven: 4/30/04

Friends & Family

“I thank my God every time I remember you.”
~ Philippians 1:3

Frisch Family

Nickolaus Frisch

Zellweger Spectrum: Zellweger Syndrome

Troy, NY

Born: 7/5/07
Went to Heaven: 6/7/11

Froio Family

Dominic Froio

Globoid Cell Leukodystrophy
(Krabbe Disease)

Baltimore, MD

Born: 7/5/80
Went to Heaven: 7/3/98

Frye Family

Leandra Frye

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brazil, IN

Born: 2/3/01
Went to Heaven: 12/28/03

Gala Family

Kinnari Gala

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fremont, CA

Born: 10/21/97
Went to Heaven: 3/26/01

Galindo Family Child 1

Zarely Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Whittier, CA

Born: 6/2/04
Went to Heaven: 2/26/07

Galindo Family Child 2

Faith Aleah Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/28/15
Transplant

Galvan Family

Johnny Galvan

Adrenoleukodystrophy
(ALD)

Costa Mesa, CA

Born: 7/13/00
Went to Heaven: 2/21/17

Garbe Family

Trevor Garbe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newhall, CA

Born: 9/2/89
Went to Heaven: 7/15/12

Garcia Family

Jackson Garcia

Globoid Cell Leukodystrophy
(Krabbe)

Lawrenceville, GA

Born: 8/9/15
Went to Heaven: 10/21/16

Garcia Family

Ailene Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Puente, CA

Born: 11/2/03
Went to Heaven: 10/20/07

Garcia Family Child 1

Victoria Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 7/2/03
Went to Heaven: 8/6/04

Garcia Family Child 2

Adam Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/22/10
Went to Heaven: 1/27/13

Gaston Family

Hailey Gaston

Unspecified Leukodystrophy

Las Vegas, NV

Born: 5/12/08

Gavriilidis Family

Zoe Gavriilidis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Peoria, AZ

Born: 9/10/07
Went to Heaven: 1/26/09

Gelhart Family

Leonie Gelhart

Metachromatic Leukodystrophy
(MLD)

Nortorf, Germany

Born: 3/11/09
Went to Heaven: 7/28/12

Gerlitz Family

Parker Gerlitz

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 7/27/12
Went to Heaven: 12/11/13

Gibson Family

Dalton Gibson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kilgore, TX

Born: 3/26/08
Went to Heaven: 2/25/09

Ginion Family

Hannah Ginion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bensalem, PA

Born: 1/15/13
Went to Heaven: 12/28/14
Hope For Hannah Facebook

Given Family

Jacob Given

Metachromatic Leukodystrophy
(MLD)

Elkton, MD

Born: 8/14/01

Glaudemans Family

Laura Glaudemans

Metachromatic Leukodystrophy
(MLD)

Idlewylde, MD

Born: 11/29/89
Transplant

Gonzalez Family

Raymond Gonzalez

Unspecified Leukodystrophy

El Paso, TX

Born: 11/22/05

Gonzalez Family

Evalina Gonzalez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wildomar, CA

Born: 1/28/12
Went to Heaven: 1/29/14

Goss Family

Chloe Goss

Unspecified Leukodystrophy

Wauchula, FL

Born: 10/18/10

Green Family

Henry Green

Metachromatic Leukodystrophy
(MLD)

Raleigh, NC

Born: 6/21/09
Went to Heaven: 12/14/12

Greene Family

Riley Greene

Metachromatic Leukodystrophy
(MLD)

Chattanooga, TN

Born: 8/26/02
Went to Heaven: 12/22/14

Gwin Family

Ashleigh Gwin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 11/15/02
Went to Heaven: 11/29/07

Hadnot Family

Mykel “MJ” Hadnot Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Milwaukee, WI

Born: 8/18/14

Haines Family Child 1

Adam Haines

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maple Grove, MN

Born: 2/6/93
Went to Heaven: 5/29/95

Haines Family Child 2

Erik Haines

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maple Grove, MN

Born: 12/7/91
Transplant

Hallock Family

Terry Hallock, III

Globoid Cell Leukodystrophy
(Krabbe Disease)

Shirley, NY

Born: 9/25/01
Transplant

Hamid Family

Daisy Hamid

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lyme, United Kingdom

Born: 4/7/10
Went to Heaven: 2/5/11
Daisy’s Caring Bridge Site

Hammonds Family

Liam Hammonds

Globoid Cell Leukodystrophy
(Krabbe Disease)

Country Club Hills, IL

Born: 9/4/00
Went to Heaven: 6/19/01

Harris Family

Lekendric Harris

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pembroke Township, IL

Born: 1/27/04
Went to Heaven: 6/13/08

Hartman-Barlow Family

Bradley Hartman

Adrenoleukodystrophy
(ALD)

Lancaster, CA

Born: 11/30/95
Went to Heaven: 7/22/17

Hauer Family

Ryder Hauer

Unspecified Leukodystrophy

Mesa, AZ

Born: 9/05/09
Went to Heaven: 8/22/12
Ryder’s Journey