Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Caruso Family

Anthony Caruso

Globoid Cell Leukodystrophy
(Krabbe Disease)

Glendale, NY

Born: 11/28/74
Went to Heaven: 8/27/76

Casavechia Family

Hayden Casavechia

Adenylosuccinate Lysas Deficiency

Benoit, MS

Born: 6/1/2011
Went to Heaven: 8/15/12
Hayden’s Website

Casey Family

Mac Casey

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunedin, New Zealand

Born: 8/24/09
Went to Heaven: 10/31/10

Casey Family

Caroline “CC” Casey

Metachromatic Leukodystrophy
(MLD)

Charlotte, NC

Born: 5/1/13
Caring For Caroline Facebook

Cassin-Potts Family

Anaya Cassin Potts

Globoid Cell Leukodystrophy
(Krabbe Disease)

Nelson, BC, Canada

Born: 8/26/09
Went to Heaven: 11/13/11

Changle Family

Dylan Changle

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Kensington, PA

Born: 4/15/09
Went to Heaven: 12/22/09

Chappell Family

Lucas Chappell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Collinsville, TX

Born: 10/18/11

Children of God

“How great is the love the Father has lavished on us, that we should be called Children of God! And that is what we are!”
~ 1 John 3:1a

Christiansen Family

Andrew Christiansen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dublin, CA

Born: 4/8/13
Went to Heaven: 6/28/14

Chumbley Family

Kieran Chumbley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harlow, United Kingdom

Born: 11/9/84
Went to Heaven: 4/11/01

Claassen Family

Jessica Claassen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 3/2/10
Went to Heaven: 1/27/17

Claflin Family

Aubrey Claflin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Streetsboro, OH

Born: 12/11/00
Went to Heaven: 12/15/02

Claverie Family

Linda Jane Claverie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Netherlands

Born: 3/4/84
Went to Heaven: 1/28/85

Clayton Family Child 1

Bryce Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 1/25/07
Clayton’s Quest Blog

Clayton Family Child 2

Annalise Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 5/24/09
Clayton’s Quest Facebook

Cole Family Child 1

Devon Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 12/6/97

Cole Family Child 2

Jacob Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 8/15/00

Cooley Family Child 1

Gracie Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 6/12/00
Went to Heaven: 9/20/01

Cooley Family Child 2

Ella Grace Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 5/11/06
Went to Heaven: 6/14/06

Cooper Family

Ashley Cooper

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sun Prairie, WI

Born: 5/5/00
Went to Heaven: 11/24/01

Cousineau Family

Evan Cousineau

Adrenoleukodystrophy
(ALD)

San Clemente, CA

Born: 11/3/97
Went to Heaven: 11/2/07

Craft Family

Katelyn Craft

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/4/05
Went to Heaven: 9/25/07
Katelyn’s Caring Bridge Site

Crilly Family

Carmen Crilly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Toronto, ON Canada

Born: 3/2/07
Went to Heaven: 1/21/08

Cross Family Child 1

Joshua Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 11/12/92
Went to Heaven: 2/20/95

Cross Family Child 2

Laura Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 7/31/99
Transplant

Cullen Family Child 1

Emily Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 2/16/03
Went to Heaven: 4/22/08

Cullen Family Child 2

Abigail Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 8/05/09
Went to Heaven: 3/1/13

Cunningham Family

Brady Cunningham

Globoid Cell Leukodystrophy
(Krabbe Disease)

Campbell, MO

Born: 4/16/08
Went to Heaven: 4/6/09

Cushman Family

Collin Cushman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wisconsin Rapids, WI

Born: 12/19/10
Collin’s Crew Facebook

D’Amico Family

John D’Amico

Globoid Cell Leukodystrophy
(Krabbe Disease)

Martinez, GA

Born: 10/25/99

Daigneault Family

Jasmine Daigneault

Aicardi-Goutieres Syndrome
(AGS)

St-Martine, QC Canada

Born: 5/23/97

Daniels Family Child 1

Emma Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

Born: 7/20/09
Went to Heaven: 3/24/12

Daniels Family Child 2

Olivia Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

Davis Family

Madelyn “Maddie” Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Danville, VA

Born: 7/21/11
Went to Heaven: 2/2/13

Davis Family

Addilyn Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Sharon, ME

Born: 8/23/11
Went to Heaven: 10/21/15

Dement Family

Hannah Dement

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pocahontas, AR

Born: 8/18/07
Went to Heaven: 8/19/08

Dion Family Child 1

Yannick Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 10/4/90
Went to Heaven: 10/4/93

Dion Family Child 2

Sandrine Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 9/27/00
Transplant

Donaire-Bechtel Family

Jaylah Donaire-Bechtel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, PA

Born: 4/19/12
Went to Heaven: 7/27/14

Dotti Family

Ludmina Dotti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Santa Fe, Argentina

Born: 1/13/12
Went to Heaven: 1/2/14

Droessler Family

Jonas Droessler

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cuba City, WI

Born: 4/20/88
Went to Heaven: 9/29/90

du Toit Family

Ellane du Toit

Globoid Cell Leukodystrophy
(Krabbe Disease)

Karen Park, South Africa

Born: 12/23/09
Went to Heaven: 7/4/11

Duffer Family

Haley Duffer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chase City, VA

Born: 11/26/07
Transplant
Hope For Haley Facebook

DuPerron Family

Robin DuPerron

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lincoln, NE

Born: 5/10/98
Went to Heaven: 1/19/99

Elmouzayen Family

Marwa Elmouzayen

Globoid Cell Leukodystrophy
(Krabbe Disease)

El Cerrito, CA

Born: 8/13/98
Went to Heaven: 3/15/05

Eveland Family

Jeramie Eveland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 9/27/97
Went to Heaven: 3/14/01

Faith

“Faith is being sure of what we hope for
and certain of what we do not see.”
~ Hebrews 11:1

Faria Family

Jared Faria

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taunton, MA

Born: 10/17/00
Transplant

Fearfully and Wonderfully Made

“You knit me together in my mother’s womb
I praise you because I am fearfully and wonderfully made.”
~ Psalm 139:13-14

Fedorak Family Child 1

Chloe Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 2/5/01
Went to Heaven: 12/2/02