Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact us here.


Abner Family

Katelynn Abner

Metachromatic Leukodystrophy
(MLD)

Sallisaw, OK

Born: 10/31/08
Went to Heaven: 7/4/14

Ackerly Family

Auggie Ackerly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bakersfield, CA

Born: 8/20/98
Went to Heaven: 3/28/99

Agee Family

Aiden Agee

Metachromatic Leukodystrophy
(MLD)

Lewiston, ID

Born: 5/7/05
Went to Heaven: 6/17/11

Akers Family

Fallon Akers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fredericksburg, VA

Born: 3/18/13
Went to Heaven: 9/20/14

Aldrian Family

Trevor Aldrian

Globoid Cell Leukodystrophy
(Krabbe Disease)

Murrieta, CA

Born: 11/5/08
Trevor’s Caring Bridge Website
Peace Love Trevor Website

Allan Family

Laura Allan

Metachromatic Leukodystrophy
(MLD)

Chesterfield, UK

Born: 8/4/87

Almy Family

Karis Almy

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson, MS

Born: 6/29/09
Karis’s Website

Altavilla Family

Joaquin Altavilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Las Heras, Argentina

Born: 8/2/09
Went to Heaven: 2/28/11

Amador Family

Isaiah Amador

Globoid Cell Leukodystrophy
(Krabbe Disease)

Riverview, FL

Born: 11/27/11
Went to Heaven: 1/14/12

Andersson Family

Viggo Andersson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Akarp, Sweden

Born: 3/6/10
Went to Heaven: 12/16/13

Arnieri Family

Ginevra Arnieri

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alessandria, Italy

Born: 12/16/10
Went to Heaven: 2/13/17

Arthurs Family

Breanna Arthurs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstock, ON Canada

Born: 9/19/02
Went to Heaven: 1/18/05

Barnett Family

Max Barnett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Phoenix, AZ

Born: 2/16/14
Went to Heaven:  5/22/16

Barnett Family

Caysen Barnett

Metachromatic Leukodystrophy
(MLD)

Amarillo, TX

Born: 6/26/07
Went to Heaven: 7/16/12

Barron Family Child 1

Alissa Barron

Globoid Cell Leukodystrophy (Krabbe Disease)

Oswego, IL

Born: 4/5/98

Barron Family Child 2

Elijah Barron

Globoid Cell Leukodystrophy (Krabbe Disease)

Oswego, IL

Born: 11/17/99
Transplant

Bateman Family

Aaron Bateman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cambridge, United Kingdom

Born: 9/20/03
Went to Heaven: 10/16/05

Bayford Family

Warrick Bayford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hemsworth, United Kingdom

Born: 8/11/09
Went to Heaven: 8/12/10

Bazar Family

Anniston Bazar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Church Point, LA

Born: 4/26/14
Always Anniston Facebook

Beatty Family

Julia Beatty

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chelsea, MI

Born: 12/27/97
Went to Heaven: 7/23/05

Behnken-Brown Family

Reese Behnken

Metachromatic Leukodystrophy
(MLD)

Howell, NJ

Born: 6/14/04
Went to Heaven: 9/30/13

Believe

Jesus called the children to Him and said, “Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these.”
~ Luke 18:16

Bensel Family

Brody Bensel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pilot Rock, OR

Born: 2/20/08
Went to Heaven: 2/11/11

Benson Family

Eden Benson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Biddeford, ME

Born: 11/28/01
Went to Heaven: 10/31/02

Benson Family

Christopher Benson

Alexander Disease

Austin, TX

Born: 12/20/04

Bentley Family

Riley Bentley

Canavan Disease

Rochester, NY

Born: 7/24/10
Hope for Riley

Bison Family

Neah Bison

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hamburg, Germany

Born: 10/5/11
Went to Heaven: 8/7/12

Bjarlestam Family

Hugo Bjarlestam

Globoid Cell Leukodystrophy
(Krabbe Disease)

Stockholm, Sweden

Born: 10/21/12
Went to Heaven: 6/27/14

Blanchard-Brown Family

Garrett Curtis Blanchard

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Jacinto, CA

Born: 2/11/11
Went to Heaven: 12/10/11
Garrett’s Video

Bonney Family

Elijah Bonney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Barrington, RI

Borodychuk Family

Olivia Borodychuk

Alexander Disease

Dewitt, MI

Born: 10/10/08
Went to Heaven: 4/28/17
Olivia Kay Website

Bourassa Family Child 1

Nicholas Bourassa

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Milford, PA

Born: 3/18/02
Went to Heaven: 2/1/03

Bourassa Family Child 2

Joshua Bourassa

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Milford, PA

Born: 7/13/04
Transplant

Brackbill Family

Victoria “Tori” Brackbill

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, PA

Born: 7/30/14
Went to Heaven: 3/27/16

Bramlett Family

Joeson Bramlett

Metachromatic Leukodystrophy
(MLD)

Rossville, GA

Born: 8/2/05
Transplant

Branch Family

William Branch

Globoid Cell Leukodystrophy
(Krabbe Disease)

Burlington, IA

Born: 6/8/14
Sweet William’s Way Facebook

Brooks Family

Eden Brooks

Metachromatic Leukodystrophy
(MLD)

Fort Worth, TX

Born: 12/21/08
Went to Heaven: 11/4/16
Eden’s Caring Bridge

Brown Family

Eilish Brown

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leven, UK

Born: 11/16/13
Went to Heaven: 9/2/14

Brown Family

David Aaron

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 12/2/97
Went to Heaven: 3/19/99

Brueske Family

Ryan John Brueske

Globoid Cell Leukodystrophy
(Krabbe Disease)

Granby, CO

Born: 4/20/89
Went to Heaven: 3/27/90

Bunte Family

Aleksandra Bunte

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lund, Sweden

Born: 6/12/01
Went to Heaven: 6/7/02

Burk Family

Madylen Burk

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bay City, MI

Born: 8/3/06
Went to Heaven: 9/2/07

Butler Family

Harry Butler

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cardiff, UK

Born: 5/12/13
Went to Heaven: 2/25/15

Buttrum Family

Harlee Rae Buttrum

Globoid Cell Leukodystrophy
(Krabbe Disease)

Glenwood, AR

Born: 1/22/08
Went to Heaven: 2/9/09

Cagle Family

Jade Cagle

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 11/10/00
Went to Heaven: 1/5/03

Calaman Family Child 1

Michael Calaman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Amity, ME

Born: 9/30/00
Went to Heaven: 3/8/09

Calaman Family Child 2

Michaela Calaman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Amity, ME

Born: 12/6/01
Went to Heaven: 1/30/17

Cammarata Family

C.J. Cammarata

Globoid Cell Leukodystrophy
(Krabbe Disease)

Holland, NY

Born: 7/6/95
Went to Heaven: 2/2/02

Canale Family

Rossana Canale

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bordeghera, Italy

Born: 10/8/13
Went to Heaven: 1/17/15

Carlson Family

Chase Carlson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fullerton, CA

Born: 5/22/03
Went to Heaven: 7/21/05