Family Symposium

  • 2017 Family & Medical Symposium - Family Group Photo
  • 2017 Family & Medical Symposium - Hailey and Marty
  • 2017 Family & Medical Symposium - Brackbill Family with Lina and Sal Sereno
  • 2017 Family & Medical Symposium - Loughheed Family and Sandrine
  • 2017 Family & Medical Symposium - Kelly Family starting the Symposium Walk
  • 2017 Family & Medical Symposium - Laura and her family at the finish line
  • 2017 Family & Medical Symposium - Talent Show!

2018 Hunter’s Hope Family Symposium

Save the Date!
July 18th – 22nd  2018
Holiday Valley Resort, Ellicottville, NY


The Hunter’s Hope annual Family & Medical Symposium brings together the world’s leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.

Two words to accurately sum up the Hunter’s Hope Family Symposium are FREEDOM and HOPE. The Symposium affords our families five days of freedom! Freedom to laugh, freedom to cry, freedom to ask any questions of others in similar circumstances, freedom to use their child’s suction machine, freedom to leave a meeting room and to come back – all without awkward stares or hurtful questions… FREEDOM!

The Symposium also offers HOPE! Families leave this week with a renewed hope from medical experts who relay knowledge of advancements in medical care, treatments, and research. They also receive hope by gaining insight from other families.

For families with a child affected by a Leukodystrophy, many simple, every day experiences can seem almost impossible. When families do venture out, it can be difficult because of the amount of medical equipment necessary just to keep their child breathing and comfortable. The Symposium is a place where everyone understands and life-long friendships can be formed with other families on a similar path. There is no judgment, only love.

For families in attendance, meals and accommodations are paid for by Hunter’s Hope. Travel arrangements to and from the event are the responsibility of the family but travel assistance is available for qualified families unable to cover these expenses.

Past Family Symposium Programs:

2017 Family Symposium Program
2016 Family Symposium Program
2015 Family Symposium Program
2014 Family Symposium Program
2013 Family Symposium Program


Medical Symposium

This annual multidisciplinary workshop brings together over 60 of the world’s leading experts in Leukodystrophies and newborn screening to discuss advances in medical care and research for these devastating diseases.


2018 Hunter’s Hope Medical Symposium

Save the Date!
July 16th – 18th  2018
Holiday Valley Resort, Ellicottville, NY


Past Medical Symposium programs:

2017 Medical Symposium Program
2016 Medical Symposium Program
2015 Medical Symposium Program
2014 Medical Symposium Program
2013 Medical Symposium Program
2012 Medical Symposium Program

Attendance to the Symposiums is by invitation only.

For more information regarding the Family & Medical Symposium, please contact us here.