If you or your child is affected by a Leukodystrophy, you are not alone. Hunter’s Hope Foundation is fully committed to providing encouragement, education and support to affected families.

 

Leukodystrophy Care Network

The LCN is a network of medical providers, hospitals, leukodystrophy organizations and affected families.  Our mission is to revolutionize the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers throughout the U.S., Canada and eventually the world.

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Family & Medical Symposium

This annual Symposium is held each year for families to come together, reconnect with old friends and make new friends. Our goal is to provide our families with a fun, relaxing and fulfilling time, while learning from medical experts about these devastating diseases.

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Equipment & Supply Exchange

This Supply and Exchange program has been designed to help fulfill the equipment or supply needs of Krabbe and Leukodystrophy children as well as help families place equipment and supplies that they are no longer using.

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Wish Gift

Our Wish Gift Program helps families facing extreme financial stress attributed to the costs associated with caring for a child with Leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.

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